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Articles- Part XI
The Politics of Hysteria
Joan Acocella, The New Yorker- 4/6/1998
In late 1989, Elizabeth Carlson, a thirty-five-year-old woman who lived with her
husband and two children in a Minneapolis suburb, was in the hospital being treated for
severe depression. She was referred to a psychiatrist, Diane Humenansky, who came to see
her and went on seeing her after she left the hospital. As Carlson recalls, Humenansky
soon suggested to her that perhaps her problem was not depression but multiple personality
disorder. M.P.D., Humenansky explained, was an elusive illness: many diagnosticians failed
to recognize the alternating personalities, or alters, for what they were, with the result
that the woman--nine out of ten people with M.P.D. were women--often ended up getting
misdiagnosed. But experts now knew that there were certain telltale signs of M.P.D. Did
Carlson ever "zone out" while driving, and arrive at her destination without
remembering quite how she got there? Why, yes, Carlson said. Well, that was an alter
taking over the driving and then vanishing again. Another sign, Humenansky said, was
"voices in the head." Did Carlson ever have internal arguments, telling herself,
for example, "Turn right--no, turn left"? Yes, Carlson replied, that happened
sometimes. Well, that was the alters quarrelling inside her head. Carlson was amazed and
embarrassed. All these years, she had done these things, never realizing that they were
symptoms of a serious mental disorder.
Multiple personality, Humenansky explained, was associated with
childhood sexual abuse, though the abuse might be forgotten. Carlson should think hard:
had anyone ever taken liberties with her? Carlson didn't have to think hard. She
distinctly remembered being molested by two men in her family. That didn't mean there
weren't other episodes, Humenansky said. Worse ones, maybe.
To help Carlson remember, Humenansky gave her books to read. One was
Ellen Bass and Laura Davis's 1988 "The Courage to Heal," now known as the Bible
of the recovered-memory movement. A third of American women were sexually abused as girls,
"The Courage to Heal" stated, and if a woman was repeatedly molested she might
have not only forgotten it but developed new personalities in which to seal off the
terrible knowledge. "The Courage to Heal" gave first-person accounts. In a later
edition, one woman wrote:
I remember splitting for the first time when I was about four and my father was trying
to force me to sodomize my pet rabbit with a roofing nail. He got very angry when I
refused, and finally, in a rage, he threw me down on the basement floor and raped me. When
I came back to myself after the experience, here were three parts of me....
Benjamin-ageless, spiritual and protective; Bunny-little and worried; and Scarlet, the
only female and the one who dealt with the sexual abuse.
Humenansky also gave Carlson books about M.P.D. cases. One was the
1957 classic "The Three Faces of Eve," by Corbett Thigpen and Hervey Cleckley,
the story of the shy housewife "Eve White" who on the odd weekend would
metamorphose into "Eve Black," a vivacious party girl, leaving Eve White with
unexplained hangovers and a reputation in local bars. As a result of this book and the
1957 movie based on it, featuring an Academy Award-winning performance by Joanne Woodward,
Eve became, for awhile, the prototype of the multiple personality. In later cases, as in
Eve's, there was often the naughty/nice split-- "librarian by day and streetwalker by
night," to quote the M.P.D. expert Frank Putnam.
Eve, however, was merely the John the Baptist of multiple personality;
the Christ was "Sybil Dorsett," a Columbia University graduate student who in
1954, at the age of thirty-one, turned up in the office of the psychiatrist Cornelia
Wilbur and stayed for eleven years. In 1973, this case became the subject of a
best-selling book, "Sybil," by a journalist named Flora Rheta Schreiber. Three
years later, the book was turned into a TV movie, with Sally Field as Sybil and Joanne
Woodward, passing the torch, as Dr. Wilbur. Sybil became the most famous psychiatric
patient in history, and the new model of multiple-personality disorder, in a form
different from Eve's. For one thing, M.P.D. now had a clear cause: childhood sexual abuse.
Eve had suffered traumas as a child, but she was never sexually assaulted. Sybil was
repeatedly, by her mother. Furthermore, the mother's actions were sadistic, perverse,
extravagant. According to the book, she probed the child's vagina with a knife and a
buttonhook. She hung her upside down and, using an enema bag, filled her bladder with
ice-cold water, then tied her to the family piano and forbade her to urinate while she,
the mother, played Chopin. A second difference between Eve and Sybil was in the number of
alters. As described by her therapists, Eve had had only three faces. ("Eve
White" and "Eve Black" were later joined by "Jane.") Sybil had
sixteen personalities. One could play the piano; another could install Sheetrock; two had
English accents; two were boys. Sybil wasn't so much a person as a club.
Prior to Sybil, M.P.D. had been one of the rarest of mental disorders.
In a 1944 article, two researchers, W. S. Taylor and Mabel Martin, reported that a search
of the medical literature had yielded only seventy-six cases that met their definition.
But after Sybil M.P.D. exploded. One expert estimated that between 1985 and 1995 there
were almost forty thousand new cases. Like Sybil, the modal M.P.D. patient was a white
North American female around age thirty. Like Sybil, she said she had suffered child
abuse, usually sexual. But Sybil's descendants outstripped her. Patients were soon
producing a hundred, four hundred, a thousand alters. And, whereas Sybil had confined
herself to human alters, later M.P.D.s branched out. The Georgia-based psychiatrist George
Ganaway, one of the first authorities to caution against the fascination with M.PD.,
reported that he had been presented with "sages, lobsters, chickens, tigers, a
gorilla, a unicorn, and 'God.'" In recollections of abuse, too, Sybil was rapidly
outdone. Multiples were now reporting rape and sodomy--indeed, "satanic ritual
abuse."
Both Eve and Sybil had been suicidal, but the multiple personalities of
the eighties and nineties were more ingeniously self-destructive. In one popular M.P.D.
biography, "Suffer the Child," the subject pours drain cleaner on her genitals.
Other multiples have shown journalists self-inflicted cuts and third-degree burns.
Self-mutilation was accepted by many M.P.D. writers as a regular feature of the disorder,
a "coping mechanism." Starting in 1990, self-mutilating patients had a
newsletter, The Cutting Edge. In a recent issue, "Carla" writes that she doesn't
really want to stop cutting herself, and that her new therapist has left the decision up
to her, so she's cutting again, "yet it's been a time of tremendous growth and
potential."
Until about 1975, there had been no M.P.D. specialty. Multiple
personality disorder had no separate listing in the American Psychiatric Association's
"Diagnostic and Statistical Manual of Mental Disorders," or D.S.M., the
guidebook to diagnosis. But in 1980, after vigorous lobbying by interested therapists, the
new edition of D.S.M. gave M.P.D. a primary-level listing among the dissociative
disorders--conditions in which some part of mental functioning splits off from
consciousness. In 1984, the new M.P.D. enthusiasts founded an organization of their own,
the International Society for the Study of Multiple Personality and Dissociation
(I.S.S.M.R. & D.), and began holding annual conferences, co-sponsored by Rush
Presbyterian St. Luke's Medical Center, in Chicago. That hospital subsequently set up the
country's first dissociative-disorders unit, under the M.P.D. expert Bennett Braun. Other
units followed. Between 1970 and 1990, the average annual output of publications on M.P.D.
increased six thousand per cent.
Among those publications were two 1989 textbooks: "Diagnosis and
Treatment of Multiple Personality Disorder," by Frank Putnam, and "Multiple
Personality Disorder," by Colin Ross. Both offered treatment plans focussing on
presumed childhood abuse. Using hypnosis, the therapist was instructed to flush out the
alters and get them to divulge their secrets, a process that often involved protracted
reenactments called "abreactions." In a typical abreaction, as Colin Ross
described it, the patient might "cry out, plead with the father to stop, clutch her
pubic area, try to push the father off, attempt to spit out semen, or curl up in the
corner." These were violent scenes. David Calof, an M.P.D. therapist who has worked
in nursing homes, reports that one of his patients had a stroke during an abreaction.
Confronted with this information, many therapists began viewing their
patients in a new light. That is apparently what happened with Diane Humenansky. She
attended lectures and read books on M.P.D. She spoke to Cornelia Wilbur. Soon she had a
number of newly diagnosed multiples under her care. Humenansky has declined to be
interviewed for this article; therefore my account of her treatment of Carlson is largely
Carlson's account. It is hard to know what Humenansky was thinking. Carlson says
Humenansky told her she had been through three divorces, had lost custody of her children
to her third husband, and was herself taking antidepressants. In 1989, when she began
treating Carlson, Humenansky was still a fully accredited physician--a graduate of Wayne
State Medical School, though, according to Carlson, she claimed it was Harvard--with
admitting privileges at several Twin Cities hospitals.
Carlson says Humenansky gave her not just books but videotapes: the
movie versions of "Sybil" and "The Three Faces of Eve," pornographic
films, war footage of people being decapitated. She said that if Carlson felt any physical
discomfort while watching the videos, that was a "body memory": it meant that
such things had happened to her, too. Carlson also says that Humenansky had her do
visualization exercises, "trying on" scenes of molestation by various people.
Using this technique, Carlson soon recovered memories of being molested by as many as
fifty relatives, including both parents, both sets of grandparents, aunts, uncles, and
great-grandparents.
According to Carlson, Humenansky also used a technique called guided imagery, in which the
patient is talked through an imaginary scene in order to awaken buried memories. In one
scenario, Humenansky told Carlson to picture herself going downstairs. Look for an altar,
Humenansky said. Carlson saw a stone slab. Look around for candles and daggers, Humenansky
said. Carlson saw them. Now look for the baby, Humenansky said. Carlson does not remember
at what point her own imagination, primed by the books and videos, took over, but soon she
saw a pregnant woman. Then the baby was born, and the afterbirth was lying on the altar,
and people in hooded robes were eating it, and so was she. (That was the first cannibalism
scene Carlson recovered with Humenansky. Today, nine years later, she still has
nightmares.) The therapy sessions often ended with Carlson's weeping uncontrollably.
Carlson says Humenansky would give her tranquilizers and tell her to chew them so that
they would take effect faster.
It wasn't long before Carlson, under Humenansky's guidance, began
identifying her different personalities. One of them was Little Miss Fluff, a nickname
that she had been given as a child because she liked frilly dresses and crinolines. In the
Eve Black slot, Carlson produced a hussy named Nikita. Sybil had had two male alters; so,
quite soon, did Carlson. She also located two nuns, Sister Mary Margaret and Sister Mary
Theresa (the latter wanted to join the Peace Corps) and a scared, depressed Old Lady.
When Carlson's mood changed, Humenansky told her she had
"switched," or changed alters. If she showed up for her session in a short
skirt, that meant that Nikita was "out." If she was depressed, that was the Old
Lady taking over. Interestingly, though--and this seems to be the case with many multiples
who have not written memoirs--Carlson never quite got the hang of multiplicity. To this
day, she doesn't know how many personalities she had. "After twenty-five, I lost
count," she says. Humenansky had Carlson write down their names, ages, and key
memories on index cards for reference, but, Carlson says, "I still couldn't keep the
darn things straight." Once, she lost the card file, and they had to do the whole
business all over again. Sometimes, she would walk into Humenansky's office and say that
she didn't want to explore alters that day--she just needed to talk. Carlson recalls,
"Dr. Humenansky said, `Well, who am I talking to?' And I would say, `This is just me,
Elizabeth.' She said, `No, I want to know which alter I'm talking to.' `It's not an
alter,' I said. `It's just me.' Finally she got out an index card and wrote down 'Just
Me.'"
Meanwhile, Carlson's mental condition was worsening. The main events of
her week were her two appointments with Humenansky--an individual session and a group
session with other M.P.D. patients. For a year, Carlson was so depressed that she rarely
left her bedroom. Heavily drugged, she sometimes slept eighteen or twenty hours a day. She
had terrible nightmares and woke up screaming and vomiting. "I stank, the room
stank," she remembers. "Every few days or so, my husband or my daughter would
take me and shove me into the shower and hose me down." Then she would go back to
bed. Carlson's daughter, Lisha, who was in her teens, took over the household and the care
of her younger brother. Eventually, she had to drop out of school. Carlson's marriage,
which had already been troubled when she first began seeing Humenansky, deteriorated day
by day. Carlson says Humenansky suggested that perhaps her husband was trying to kill her.
Carlson threw him out of the house repeatedly. Meanwhile, she had cut off all contact with
the rest of her family, because, as she now understood, they were still members of the
cult that had abused her as a child, and if they found out what she was revealing in
therapy they would murder her.
"I just got crazier and crazier," Carlson recalls. She banged
her head on walls and tore out her hair in chunks. "I was ready to kill myself. I
thought it was better for me, and better for my children." When, in rare moments of
protest, she asked Humenansky why the therapy wasn't helping, the doctor repeated to her a
basic principle of M.P.D. treatment: "The patient has to get worse in order to get
better."
How could Carlson have believed what Humenansky was telling her? M.P.D.
patients are often given strong medications--particularly benzodiazepines, such as Valium,
Halcion, and Xanax. (In a 1995 court case, Colin Ross acknowledged that he had had one
patient on fifty-one milligrams of Halcion a day, which is a hundred times the prescribed
maximum for that drug.) During her time with Humenansky, Carlson took Xanax, Valium, and
Ativan for anxiety; Pamelor, Desyrel, and Prozac for depression; and Restoril for
insomnia. In the words of one former patient, "If you take enough drugs, you can
remember about anything."
Another factor in the M.P.D. epidemic was hypnosis. For well over a
century, it has been recognized that the memories people produce under hypnosis are not
necessarily accurate. Above all, subjects are exquisitely sensitive to cueing by the
therapist. Experiments have shown that hypnotized subjects, given the appropriate
suggestion, can recall former lives as chimpanzees. For these reasons, supreme courts in
half the states no longer admit hypnotically refreshed testimony. Nevertheless, in a 1992
survey of more than a thousand psychotherapists with advanced degrees, the hypnosis expert
Michael Yapko found that almost half of them believed that memories produced under
hypnosis were more accurate than non-hypnotic recall.
A third factor was the patients' hypnotizability. The ability to go
into a trance varies from person to person, but it doesn't vary much in multiples. In the
words of the M.P.D. theorist Eugene Bliss, they are "hypnotic virtuosos." If a
highly hypnotizable woman goes to a therapist who believes in M.P.D. and in the accuracy
of hypnotic recall, and if the therapist asks her, while she is under hypnosis, whether
she has other "parts" to her personality (something that most of us feel we
have, if only metaphorically) and whether she was abused as a child (something that many
of us feel we were, if only psychologically), she is likely to produce.
Believers in M.P.D. argue that many patients receive their diagnosis
without having been hypnotized. But people who are highly hypnotizable often do not
require formal hypnotic induction in order to go into a trance. Many diagnosed multiples,
whether or not they have M.P.D., do have dissociative symptoms--"spells,"
trances--that make them vulnerable to suggestion. Elizabeth Carlson remembered vividly the
meetings of the satanic cult: the color of the men's robes, the sight of the afterbirth on
the altar. Humenansky didn't hypnotize her, and didn't have to, for Carlson was highly
trance-prone.
Another important factor was the media. During the period of Carlson's
therapy, magazines and newspapers were retailing utterly credulous stories about M.P.D.
And then there was television. Phil Donahue was apparently the first talk-show host to
present a program on M.P.D.; he was followed by Sally Jessy Raphael, Larry King, Leeza
Gibbons, and Oprah Winfrey. Meanwhile, celebrities were coming forward with tales of
childhood abuse: Roseanne, La Toya Jackson, Oprah herself. Some claimed to be multiples.
Roseanne, for example, had unearthed twenty-one personalities in herself, including Piggy,
Bambi, and Fucker, M.P.D. experts also went on TV. Bennett Braun appeared on the Chicago
evening news with his star patient, who switched personalities on camera. Again and again,
on the talk shows it was stressed that M.P.D. was not rare; it was common. "This
could be someone you know," Sally Jessy Raphael said.
On the average, people who receive a diagnosis of M.P.D. have already
spent seven years in the mental-health system. According to various patient surveys,
almost ninety per cent of them are depressed, sixty-one per cent have made serious suicide
attempts, and fifty-three per cent have a history of substance abuse. Elizabeth Carlson
came from a family of eight children, with a distraught mother. "I believed that that
was how all families were," she says. "That if your mother was having a bad day,
she beat the crap out of you, broke a broom over your head." As for being molested,
Carlson thought that that was normal, too, and when she found out it wasn't, she figured
it was her fault: "Because I was such a girly girl, always flouncing around, with the
little anklets and the little ringlets. I had called attention to myself, and that's how
those incidents happened to me." At fourteen, she started running away from home.
Then she lapsed into a depression and was hospitalized. Her parents, feeling unable to
cope with her, made her a ward of the state, and she was placed in a "youth
center." There were further depressions and hospitalizations, and also suicide
attempts.
By 1989, when Carlson began seeing Dr. Humenansky, she was on her
second marriage. She had two children and no money. She had tried to go back to college,
but in the middle of class she would be seized by a panic attack and would have to leave
the room. She had sometimes worked as a fitness instructor, but at this point she had been
unemployed for four years, and was in the hospital again--her fifth psychiatric
hospitalization, as she recalls. And when Humenansky told her that the cause of all her
unhappiness was multiple personality disorder, her life made sense to her for the first
time in years. It wasn't she who had done things wrong; it was her alters.
Furthermore, Humenansky seemed to be offering her a kind of sympathy
and care that she had been lacking for a very long time. Most diagnosed multiples have
reported long histories of abandonment. Once they find the M.P.D. doctor, this
relationship, in the words of the M.PD. expert Richard Kluft, is likely to become
"the most powerful and/or gratifying event of their lives." M.P.D. therapy
offered Carlson a further inducement: political solidarity. Child-molesting is primarily a
crime against females, and, according to M.P.D. insiders, that was why M.P.D. had been so
ignored in the past: because women had no political power.
To own up to having been abuse reveal the damage done--in short, to
have M.P.D.--was to stand up for women. The relationship between the M.P.D. movement and
feminism is a thorny matter. On the one hand, M.P.D. and its underpinning, recovered
memory, have been caustically criticized by a number of feminist writers, among them
Janice Haaken, Ruth Leys, Debbie Nathan, Wendy Kaminer, Carol Tavris, Louise Armstrong,
and Elaine Showalter. On the other hand, both M.P.D. and recovered memory are in large
part feminist movements, whose supporters have accused those critics of being turncoats,
abandoners of women.
Actually, the M.P.D. craze was probably a side effect of the women's
movement. While feminism rescued many women from positions of dependency, it left others
behind--notably, a large number of working-class women. Many of these women had the same
difficult lives that their mothers had had: early pregnancy, unkind husbands, boring jobs,
little money, no education. But in the post-sixties period they also lost the protections
that their mothers had had: a strong family structure and the belief that their fate was
woman's fate. As the Marxists would say, they were deprived of false consciousness. All
around them, they saw women who did not share this "woman's fate." How had they
missed the boat? This state of affairs may help to explain not just M.P.D. but the general
outbreak of female disorders in the last few decades: eating disorders, codependency, and
so on. Wendy Kaminer, in her book "I'm Dysfunctional, You're Dysfunctional,"
tells of women in recovery groups accusing themselves of being passive, submissive.
"These are women whom feminism bypassed," Kaminer writes.
So were the multiples, with the difference that their disorder supplied
what they lacked. Suddenly, with the establishment of the abuse history, they were no
longer downtrodden. They were courageous-survivors. Furthermore, they were unusually
intelligent--an article of faith in the M.P.D. literature. (Sybil was said by Schreiber to
have had an I.Q. of 170.) Above all, they were creative, or they became so once they got
into M.P.D. therapy.
They were asked to inventory their alters, showing all the things they
were--a project that, according to Colin Ross, might take a year. They were required to
tell their story, and as the therapist made clear to them, it was a fascinating tale. For
this project, furthermore, they had a support network. By the late eighties, there were
clubs for multiples to join, newsletters to publish their poems, exhibitions of their art.
In other words, M.P.D. therapy gave its clients something that they
could not get from the society: an interesting job. Chris Sizemore ("Eve") has
said that having M.P.D. was "fun" that when she recovered, the "magic"
went out of her life. In Carlson's M.P.D. group, the women would get down on the floor,
switch into their child personalities, and play board games, while Humenansky sat in a
chair, smiling down on them--like Mother Goose, Carlson says. "There we'd be, playing
Candyland, and our insurance companies would be getting charged for it." For most
patients, life as a multiple cannot actually be fun, but, as Kluft has acknowledged, it
may be preferable to their "baseline realities." And, no matter how bad things
are, the patient at least has the pleasure of knowing that she has a famous illness.
Humenansky told Carlson that she was going to write a book on M.P.D., and that Carlson's
story would be part of it.
Eventually, Carlson came to her senses. Another woman in her M.P.D.
group recommended a new medication to her. She got a prescription from Dr. Humenansky,
started taking the drug, and felt better, so she flushed all her other pills down the
toilet. Around the same time, Humenansky brought a new patient into the group, and nobody
liked her. "She monopolized the hour," Carlson says. "No one else could
talk. Also, she kept lifting up her blouse and showing us where she had sprayed oven
cleaner on her breasts." When the others protested, Humenansky said that if they
didn't like the group they could start their own. They did so. Once a week they got
together, and as they talked they began to notice certain odd things: all of them had
similar abuse memories, memories that closely resembled events in the books Humenansky had
given them. Carlson recalls, "One woman said, `I have a confession to make. I made up
an alter named Nikki, because everybody else in the group had a Nikki, and I felt left
out.' Slowly it began to dawn on us what had happened. Still, I didn't feel I could quit
therapy." One day, she called Dr. Humenansky's office to confirm an appointment. As
Carlson recalls, the doctor "said that the M.P.D. group was conspiring against her
and that, on the advice of her attorneys, she was dropping all of us as patients. This was
in November. I begged her to keep me until the holidays. Christmas was always hard for me.
She said no and hung up. I cried. That was the end. Two years."
Carlson's is by no means the most grotesque of the M.P.D. cases that
have come to light in the past few years. Unlike Bennett Braun's star patient, Patricia
Burgus, who switched alters on camera for the Chicago TV news, Carlson did not come to
believe that she was a satanic priestess in charge of a nine-state region; that she had
eaten parts of two thousand dead bodies per year; or that her children were cult members
and practiced killers. Unlike Burgus, and also unlike Mary Shanley, another patient in
Braun's unit at Rush, she did not hospitalize her children and confess that she had
molested them. Unlike Shanley, she was not a primary-school teacher, and so she was not
reported to the authorities by one of her therapists and effectively barred from
practicing her profession for five years while she fought to have her name removed from
the state's registry of child sex abusers.
But if Carlson's case was not the most scandalous it was nonetheless a
landmark. In 1993 and 1994, Carlson and another woman in her M.P.D. group, Vynnette
Hamanne, sued Diane Humenansky. Humenansky denied most of their allegations. At the
Carlson trial, she testified that she had complied with "the requisite standard of
care in all respects." Nevertheless, Carlson was awarded $2.5 million in damages and
Hamanne $2.7 million. According to the women's attorneys, Edward Glennon, R. Christopher
Barden, and Christopher Yetka, these were the largest jury verdicts ever delivered in the
United States in a case involving recovered memory. They set an example. Several former
patients have filed lawsuits against Bennett Braun, and all but a few have been settled.
Patricia Burgus's suit against him and her other therapists was settled last fall for
$10.6 million by the insurance companies involved. (Braun objected to the settlement and
denied all wrongdoing alleged in this and other suits.) In addition to Carlson and
Hamanne, nine other former patients sued Humenansky; all these cases were settled out of
court. In two suits she was also accused of having sexual relations with her patients, an
allegation she denied. In 1996, her license to practice medicine in the state of Minnesota
was suspended indefinitely by the Board of Medical Practice. The report ordering her
suspension cites a letter Humenansky sent in her defense: "With respect to the
numerous complaints and civil lawsuits filed against her, Respondent blamed those on the
`perpetrators of childhood sexual assault.'"
If Carlson didn't have multiple personality disorder, has anyone ever
had it? Every culture has what medical anthropologists call its "idiom of
distress." In China and Southeast Asia, there is a serious disorder, koro, in which a
man imagines, with terrible dread, that his penis is being retracted into his body. Koro
is almost unheard of in the United States, just as anorexia nervosa, said to afflict up to
one per cent of young American women, is virtually unheard of in societies where people
have koro. Mental disorders also go in and out of vogue. Two hundred years ago, there was
a fashion for somnambulism. The somnambulists were said to have otherworldly powers: while
sleepwalking, it was reported, they would write poems, swim rivers, walk over rooftops.
Today, somnambulism is considered a minor complaint, usually confined to children, who
will generally do something quite unremarkable, such as eat a sandwich or go to the
bathroom, before returning to bed.
Most psychiatric professionals do seem to believe that
multiple-personality disorder is real but that it rarely occurs spontaneously and
therefore does not deserve to be a primary-level diagnosis. Like the majority of
psychiatric patients, people diagnosed with M.P.D. tend to be "co-morbid"; that
is, they meet the diagnostic criteria for more than one disorder. According to one
authority, the average M.P.D. patient qualifies for three or four other psychiatric
diagnoses (another expert makes it eleven)--typical accompaniment being depression,
antisocial personality disorder, and borderline personality disorder. If M.P.D. overlaps
so heavily with those disorders, should it be counted as a disorder in its own right? When
faced with a patient who is chronically depressed, or who seems to have no sense of
responsibility to others (antisocial personality disorder), or who fluctuates between rage
and neediness (borderline personality disorder)--all common and serious problems--and who
also tends to zone out now and then, why would a diagnostician hone in on the last symptom
and start asking questions that nudge the patient toward the historically rare diagnosis
of M.P.D.?
M.P.D. is part of the history of hysteria, a disorder in which the
patient shows symptoms--usually physical (paralyses, numbness, pain) and sometimes
psychological (outbursts, spells) in the absence of any evident organic cause. That is
only half the definition, however. Hysteria has always been regarded as a women's
syndrome. (Hence the disorder's name, from the Greek hystera, or "uterus.")
Hysteria can be traced back four thousand years, but in the late nineteenth century it
acquired a new importance, particularly in France. The celebrated Parisian neurologist
Jean-Martin Charcot published more than a hundred case histories on the subject, and gave
famous lecturedemonstrations in which his patients, under hypnosis, would undergo
hysterical attacks. Bookstores sold collections of photographs of hysterics in mid-attack.
The number of patients multiplied year by year.
Why did this happen? A number of trends--the rise of neurology, the fad
for spiritualism, the whole nineteenthcentury cult of the irrational--clearly contributed.
Another factor, no doubt, was the new campaign for women's rights. Hysteria was not merely
a female complaint, it was widely regarded as a manifestation of women's moral
weakness--their deceitfulness, their immaturity, their fusses and tears and
attention-seeking. "As a general rule, all women are hysterical," the French
physician Auguste Fabre wrote in 1883. "What constitutes the temperament of a woman
is rudimentary hysteria." Such theories came in handy as European society in the late
nineteenth century was hit by the first great wave of modern feminism. Women couldn't be
granted the vote, opponents said. They were irresponsible, hysterical.
It was during the hysteria fad that M.P.D.--it was called "double
consciousness" then--began to receive attention, as a subtype of hysteria. By the
turn of the century, however, hysteria began dying out in Europe, and double consciousness
with it. Neurosis was being handed over to a new generation, indeed, to one man, Sigmund
Freud, and, according to modern M.P.D. enthusiasts, it was Freud who killed M.P.D. He
abandoned hypnosis, which was essential to the study of dissociation. He also abandoned
dissociation--the idea that memories could be walled off, pristine, in the mind. But
that's not all. In his seduction theory his--belief, during the eighteen-nineties, that
his patients' hysterias were due to their having been molested as children--he discovered
what modern M.P.D. theorists see as the mother lode. And then he walked away from it. He
switched theories, from actual seduction to fantasized seduction--in other words,
childhood sexuality. As a result, psychoanalysis was born, and, according to M.P.D.
adherents, multiple-personality disorder was thrust back into darkness for almost a
century.
The return of M.P.D. began with the child-protection movement in the
nineteen-seventies. In 1962, in the Journal of the American Medical Association, a group
of Denver pediatricians, headed by C. Henry Kempe, published an article called "The
Battered Child Syndrome," demonstrating via X-rays that very small children had been
beaten, presumably by their parents, hard enough to break their bones. This fact, it is
now said, had been known to pediatricians for years; only Kempe's group had the stomach to
publish it. In any case, it created a furor.
The child-protection movement was quickly joined by feminists, and they
gave it a new twist. To Kempe's group, the problem was that children were being physically
assaulted. To the feminists, the problem was that female children were being sexually
assaulted. Furthermore, as the feminists saw it, this was not something that the society
discouraged. In the words of Florence Rush, a social worker, speaking at a New York
Radical Feminist Rape Conference in 1971, sexual abuse was a way of teaching a girl
"to accept a subordinate role; to feel guilty, ashamed, and to tolerate, through
fear, the power exercised over her by men."
Out of this meeting between feminism and the child-protection forces
came the recovered-memory, or R.M., movement, spread by so-called "recovery
manuals"--notably, "The Courage to Heal," which sold three-quarters of a
million copies in its first and second editions. Were you "bathed in a way that felt
intrusive to you?" Were you "fondled, kissed, or held in a way that made you
uncomfortable?" Then you were an abuse victim. As "The Courage to Heal"
defined sexual abuse, these experiences qualified, just like rape. And, once dwelt upon,
such memories tended to generate others--for example, rape. By such means, the R.M.
movement persuaded hundreds of thousands of women that they were part of a worldwide
sisterhood of sex-abuse victims, condemned for the rest of their lives to live out the
consequences of the trauma-like survivors of the Holocaust. (It was from the Holocaust
victims that the R.M. claimants took their name: they, too, were "survivors.")
Many of these women began suing their alleged abusers, and state after state rolled back
its statutes of limitations to permit them to do so. Recovered memory was accepted as
evidence in criminal trials as well--most famously in California in the 1990 conviction of
George Franklin, whose grown daughter Eileen Lipsker suddenly remembered that her father
was responsible for the unsolved murder, twenty years earlier, of an eight-year-old friend
of hers. (The conviction was later reversed.)
Like M.P.D., the R.M. movement was enthusiastically supported by the
media. But even apart from their coverage of the "epidemic," the press, together
with television and movies, must be seen as a crucial source of both R.M. and M.P.D. They
supplied the imagery for the memories. With the "Freddy" movies around, with rap
singers singing about butchering women, what's a little afterbirth-eating? The media
supplied alters too-- M.P.D. patients were reporting Mr. Spock alters, Ninja Turtle
alters. The very form of the disorder, with its "switching," seemed to come from
our fast-cutting visual entertainments. George Ganaway has pointed out the video-game-like
quality of M.P.D. therapy: as soon as one layer of alters has been identified and its dark
deeds reenacted, another layer would descend, and another, until, as Ganaway put it,
"the therapist finally tires of the game or the host personality runs out of
quarters." Finally, the entertainment industry gave the R.M./M.P.D. movement its
tone, its combination of luridness and piety.
Michael Jackson fondling his genitals and singing "Heal the
World"--this is the same strange land from which we got R.M./M.PD. enthusiasts
retailing sex stories under the banner of child protection. But the single most important
cause of the epidemic was the culture wars of the eighties and nineties. Oddly, both sides
embraced M.P.D. and R.M. To leftists, these traumatic conditions were simply further
demonstrations of the victimization of the populace by white males. To the right, the
sexual crimes behind R.M. and M.P.D. were surely the results of the new permissiveness
that was tearing society apart. The Christian fundamentalists were in the front ranks of
the movement. So were the feminists. Feminist therapists began leading groups to help
women unearth their abuse memories; they set up workshops to teach other therapists how to
spot M.P.D.
At the same time, many people started asking questions about this weird
development. If M.P.D. was such a widespread disorder--Colin Ross estimated its prevalence
at one per cent, roughly the same as for schizophrenia--why did it show such a narrow
distribution, with the vast majority of M.P.D. patients being white, female, and North
American? And why were so many of them coming out of the offices of so few therapists, the
very ones who were publicizing this new syndrome? Among the early doubters were Corbett
Thigpen and Hervey Cleckley, the therapist/authors of "The Three Faces of Eve,"
back in 1957. Nearly three decades later, Thigpen and Cleckley wrote an article saying
that since the publication of "Eve" hundreds of "multiples had come in or
been sent to them by therapists for confirmation of the diagnosis. In all these cases,
they said, they had found exactly one true M.P.D.
Then one of Sybil's therapists spoke up: Herbert Spiegel, who had
handled Sybil's case when Cornelia Wilbur was out of town. One day; Spiegel says, while he
was having a session with Sybil, he asked her a question. "And Sybil said, `Well, do
you want me to be Helen?' I said, `Why would you think I would want that? 'She said,
`Well, when I talk to Dr. Wilbur, when I get to this thing, she wants me to be Helen.' And
I said, `No, you don't have to if you don't want to. I can hear you just as Sybil.' And
she said, `Fine, I'd prefer it that way.' That's when I found out what Connie was doing
with this case." Spiegel, who is a hypnosis expert, noted that Sybil was naturally
dissociative: she spontaneously entered self-hypnotic trances. And those trances were what
Wilbur called Sybil's alters. As Spiegel explains it, "When Sybil got into those
states, Connie, who was a psychiatrist knowing nothing about hypnosis made it easier for
herself to communicate with them by giving them a name." Spiegel adds that when Flora
Rheta Schreiber was negotiating with a publisher for the book that was to become
"Sybil" she suggested to him that he coauthor it with her. He was interested.
Then she told him that it was going to be a case history of multiple-personality disorder.
"I said to her, `But Sybil wasn't a multiple personality. Those things were
artificial fragments, artificially created by Connie. When Sybil was with me, she didn't
have to be those people.' And Schreiber said, `We have to call it a multiple. That's what
the publisher wants. That's what will make it sell.' I said, `No, thanks.' And, after
that, when I saw Connie at conferences she wouldn't speak to me. She looked the other
way."
To answer such charges, the M.P.D. treaters needed evidence, in the
form of studies showing, for example, that the kind of abuse their patients were
alleging--violent abuse, repeated over many years--could in fact be forgotten and then
accurately recalled, as was said to be happening in M.P.D. therapy. There was no such
evidence. Meanwhile, memory research, a hot field at this time (partly because of R.M.),
was demonstrating exactly the opposite: that even for traumatic events memory degrades
quickly and is highly inaccurate. Nor, in the vast majority of cases, could the M.P.D.
experts show that their patients had ever been sexually abused. Sexual abuse, it must be
said, is very hard to prove. Child-molesters do not normally volunteer this information.
But very few therapists even looked for corroboration. Most were content to cite the
percentage of multiples alleging abuse--often after years of abuse-focused therapy, not to
speak of exposure to the recovery manuals. Or they cited figures on the prevalence of
"abuse"--that is, physical or sexual. Children are physically abused every day,
and by current definitions I and most of my childhood friends would be considered to have
a physical-abuse history. (That is, we were spanked often. That was discipline in the
fifties.) But, according to the M.P.D. expert Richard Kluft, "M.P.D. is primarily a
disorder of sexually abused women." This has never been demonstrated.
Another thing that the M.P.D. people could not prove was that childhood
sexual abuse causes any kind of adult psychopathology, let alone M.P.D. Many studies have
found that people reporting childhood sexual abuse show higher levels of psychological
disturbance, but when the subjects are matched with controls on "family
pathology"-that is, when people who come from terrible families that abused them
sexually are compared with people who come from families equally terrible--except that
they didn't abuse them sexually--the two groups' psychopathology rates turn out to be
about equal. One 1994 study tried to separate the effects of five kinds of maltreatment:
sexual abuse, physical abuse, verbal abuse, emotional neglect, and physical neglect. The
findings indicated that the most damaging is emotional neglect. As for sexual abuse, a
recent report summarizing many studies says, "A substantial number of these
investigations find that a majority of victims suffer no extensive harm."
Many people view this finding with repugnance. So do I. (If only a
minority suffer extensive harm, that's still a problem.) According to Ian Hacking, in his
1995 book on M.P.D., "Rewriting the Soul," our discomfort is rooted in
"consequentialist ethics," the idea that for something to be bad it must have
bad results. Adults who engage children in sex, Hacking says, should be condemned on
absolute grounds, regardless of the consequences for the child. Most people would agree
with him--I would--but such a position has no bearing on the claim that sexual abuse
causes multiple personality disorder.
If the science behind M.P.D. was poor, that is because M.P.D. was never
really part of science. Rather, it was a belief system. In part, R.M./M.P.D. was a
liberationist movement, akin to the human-potential movement of the sixties. Bass and
Davis, in "The Courage to Heal," advised the reader to dance her feelings. They
told her that when she came to terms with her abuse she would release untapped potential
that would transform not only her own life but the world: "Imagine all women
healed--and all that energy no longer used for mere survival but made available for ...
freeing political prisoners, ending the arms race." Gloria Steinem, in her
best-selling book "Revolution from Within," actually sang the praises of M.P.D.
as a source of untapped creativity: "People in different alters can perfect a musical
or linguistic talent that is concealed to the host personality, have two or even three
menstrual cycles in the same body, and handle social and physical tasks of which they,
literally do not think themselves capable." But liberation had its nastier side too.
According to the feminist therapist-writer Judith Herman, any skepticism regarding abuse
reports amounted to "identification with the perpetrator." People asking
questions about R.M. and M.P.D. were accused by others of protecting sex criminals. Or, it
was suggested, they might be sex criminals. And it was this stepped-up passion, this
paranoid edge, that made the movement vulnerable to the thing that would finally undo it:
the satanic-ritual-abuse, or S.R.A., craze.
Like the M.P.D. movement, the S.RA epidemic of the eighties was kicked
off by a mass-market book, "Michelle Remembers," by Michelle Smith and Lawrence
Pazder. Smith was a Canadian housewife, Pazder the psychiatrist who, in a year's worth of
trance sessions, helped her recover her memory of being tortured at age five by a satanic
cult. Briefly, the Satanists starved her, vomited on her, sodomized her, electro-shocked
her, drove her into a rock embankment in an exploding automobile, gave her rubdowns with
bloody gobbets of cut-up dead people, dumped her in an open grave and threw dead kittens
on her. After a year of this, they let her go, and she forgot the whole thing until her
sessions with Dr. Pazder, twenty-two years later. In 1980, Smith and Pazder published
their account of this. Later, they divorced their respective spouses and married each
other.
In recent years, "Michelle Remembers" has been widely smirked
at, but soon after its publication the day-care scandals of the mid-eighties erupted, with
children, often under aggressive interrogation, claiming that they had suffered atrocities
of the same sort. Before long, adult women were also reporting such memories. In 1983, the
F.B.I. initiated a study examining the evidence in more than three hundred alleged crimes
by organized cults. Investigators could not find corroboration for a single one. To
believers, though, this made little difference. Again, Christian fundamentalists were in
the forefront. And, again, many feminists lined up on their side. In 1993, Ms. published a
story in which a woman described her torture by a cult and asserted that S.R.A. was
another arm of the patriarchy. How was it possible for feminists to support a movement so
conservative, so alarmed about sex, so concerned with the endangerment of females, who
obviously, for their own protection, should not go out in the world and, above all, should
never place their children in day care? Well, the eighties was a period of vigorous
backlash against feminism. In that tormented context, many feminists clearly felt that any
woman alleging abuse, even by a devil with a tail, had to be believed.
In a number of quarters, S.R.A. became part of M.P.D. treatment.
Witness Elizabeth Carlson's therapy. Yet there was a big difference between M.P.D. and
S.R.A. Though crediting M.P.D. might be hard, the S.R.A. stories of robed cultists dining
on babies, of priests collecting blood, semen, and urine in chalices for group libations
were frankly ludicrous. And this lack of credibility created a crisis in the M.PD. world.
If the believers in M.PD. defended S.R.A., this would put them in the position of kooks.
But if they repudiated the S.R.A. stories they would be casting doubt on everything they
had stood for up to then, because the therapeutic procedures that had produced the S.R.A.
stories--indeed, in many cases, the patients who had produced the S.R.A. stories--were the
same as those that had produced the M.P.D. stories.
Predictably, the moderates walked out, and the hard-liners stayed and
took a harder line. Extremism swamped the field. Bennett Braun descried a cult involving
the Ku Klux Klan, the neo-Nazis, organized crime, big business, and the military, together
with FTD florists. (The flowers sent to his hospitalized patients, Braun said, were
color-coded with instructions from the cult: "Pink flowers mean suicide, red means
cutting," and so on.) Colin Ross, in a proposal for a book to be called "C.I.A.
Mind Control," claimed that the enemy was not Satanists but the C.I.A. He declared
that federal agents were programming M.P.D. into children "with specific letter,
number and other access codes for contacting alter personalities." Local police
forces were supposedly in on the cults. So was Kenneth Lanning, who had headed the F.B.I
study. Reading about these new M.PD. theories--grand-scale, multinational, with
laptop-toting Satanists--one is almost nostalgic for the old-style abuse stories, with
Uncle Joe out by the woodshed. At least, they were about human things: sex, weakness,
sorrow.
As Nicholas Spanos pointed out in his book on M.P.D., "Multiple
Identities and False Memories," the witchcraft panics of the sixteenth and
seventeenth centuries tended to fizzle out in any given community once the accusations
spiralled up the social scale and hit people of power. That is what happened with
recovered memory. Among the accused was a mathematics professor at the University of
Pennsylvania, Peter Freyd. In 1990, Freyd's daughter, Jennifer, a psychology professor at
the University of Oregon, claimed that with the help of her therapist she now remembered
that her father had molested her throughout her childhood, from fondling at age three to
rape at sixteen. (She has never retracted the substance of these accusations.) Peter Freyd
denied the charges, and Pamela Freyd--Peter's wife, Jennifer's mother, and also a
Ph.D.--got together with a group of psychiatrists and founded the False Memory Syndrome
Foundation, to help families faced with such claims. With the aid of publicity in the
local press, and with an advisory board including some of the biggest names in American
psychology, the foundation converted what for most accused families had been a private
disaster into a public scandal, something that they could admit had struck their house.
And so they began to fight back.
Meanwhile, criticism of M.P.D. within the profession was mounting at a
furious pace. In a 1993 issue of the Harvard Mental Health Letter, Paul McHugh,
director of psychiatry at Johns Hopkins, called for an immediate end to M.P.D. treatment:
"Close the dissociation services and disperse the patients to general psychiatric
units. Ignore the alters. Stop talking to them, taking notes on them, and discussing them
in staff conferences." The popular press suddenly reversed itself. In 1991, Time
had published a trusting and righteous article on the new incest-remembereds. Two years
later, the magazine printed a cover story entitled "Lies of the Mind," warning
that the R.M. movement might do "irreparable damage" to the psychotherapy
profession. The TV talk shows began featuring "retractors," as patients
repudiating their recovered memories were called, in place of or together with survivors.
Public television produced caustic reports on M.P.D., R.M., and S.R.A. Even Hollywood
backpedalled. In the most recent M.P.D. movie, the 1996 "Primal Fear," a
murderer, having escaped conviction on the ground that he had M.P.D., turns out to have
faked the disorder.
But the most dramatic change took place in the courts, as the wave of
R.M. suits (patients suing abusers) gave way to an opposing wave of malpractice suits
(patients suing therapists). In Springfield, Missouri, there was the case of Beth
Rutherford, who in 1993 "remembered" in therapy that her father had repeatedly
raped her and forced her into coat-hanger abortions. (The father, a minister, lost his
job.) Two years later, a medical examination found Rutherford to be a virgin. In Appleton,
Wisconsin, there was Nadean Cool, who in M.P.D. therapy developed a hundred and twenty-six
alters, including the devil and a duck. To flush out the devil, Cool's therapist had
subjected her to an exorcism, bringing along a fire extinguisher, because, he was quoted
as saying, "sometimes Satan leaves rings of fire." (The press had a wonderful
time with these stories.) Then, there were the cases against Humenansky, Braun, and
others, resulting in multimillion-dollar settlements. As the suits against therapists
multiplied, suits against alleged abusers receded, and those that were filed did not fare
well: between 1989 and 1996, almost half were dismissed.
Desperate to shake off the scandal, M.P.D. therapists changed the
disorder's name. In 1994, in the fourth edition of D.S.M., multiple-personality disorder
was unglamorously rechristened "dissociative identity disorder." Other new words
followed. "Recovered memory" became "delayed recall." "Satanic
ritual abuse" became "sadistic abuse." But these maneuverings were minor
compared with the changes in technique. All the procedures that M.P.D. authorities had so
enthusiastically recommended--hypnosis, abreactions, alter-probing--they now backed away
from. It was like a Presidential campaign: everyone moved to the center. Everyone was
afraid of being sued.
Many therapists objected to this backpedalling, regarding it as
cowardice. In a recent essay, the psychoanalyst Sue Grand describes her reaction when a
patient voiced a suspicion that she had been a victim of incest. Instead of just worrying
about the patient, Grand began worrying about herself as well:
I will be implicated. Financially ruined, professionally humiliated. I am a little
girl, terrorized, with a shameful secret. Even as she weeps, she does not yet know, but
she has lost me. I hear the howls of judicial accusation: Have I suggested this? How can I
demonstrate that I haven't? Should I start taping to protect myself, and how to explain
this to the patient? ... Suddenly I feel I must demonstrate to the patient that these
[incest] images may be more symbolic than literal.
But the cause that was most damaged was feminism. Like hysteria in
the nineteenth century, M.P.D. erupted in the twentieth century at the same time as a
bitter struggle for women's rights. And, like hysteria, it was an excellent argument
against women's rights. Point for point, M.P.D. repeats the old weak-woman stereotype. In
the alternating personalities, we have woman's notorious volatility ("La donna e
mobile"). In the contest between the child alters and the hussy alters, we have the
Madonna/whore split. With the amnesia and the involuntary switching, we have woman's
long-recognized moral incapacity--the notion that she cannot be held responsible for her
behavior. In the hidden cause, the childhood sexual trauma, we get further essential
components of femininity. Women are childlike, passive, wounded. Above all, women are sex;
they are what's between their legs. Meanwhile, in the therapy, with its relentless focus
on the patient's feelings, we have woman's famous subjectivity, her preference for emotion
over action, her status as a creature of phone calls and girl talk. More than a disorder,
M.P.D. is a memory--a memory of women, invoked by men. (Apart from Cornelia Wilbur, who
died six years ago, all the major M.P.D. theorists have been male.) On the cover of
"Michelle Remembers" is a little blue-eyed girl, hugging her doll, and smack in
the middle is a shot of the child's little crotch. The artist is looking up the dress of a
five-year-old. For a very long time, the most advantageous thing a woman could be in our
society was childlike and sexual at the same time, and that is the state to which
multiple-personality disorder restores her. The M.P.D. diagnosis is a tradeoff. The
patient forfeits the privileges of being an adult-- self-knowledge, moral agency. In
return she is given back the sex-child dream, the cotton panties of yesteryear. If one
were so minded, one might suggest that M.P.D. was an anti-feminist conspiracy. But it was
less a conspiracy than a reflex of our current politics. Year after year, disadvantaged
groups knock on the door of the society, protesting their position. The society offers
reparation. Some mechanisms of reparation--affirmative action, for example--are practical
and useful, aimed at giving the group a genuine place in the world, but they take effect
slowly. In the interim, other consolations are offered, such as the idea that the society
works not by one set of truths but by many, and that every group is entitled to its own
"narrative." Fed this fantasy, the disadvantaged group goes off and makes up its
narrative, until, very soon, the story becomes too extravagant. At that point, it is
attacked, and then the situation becomes clear: that in this promise of an alternative
truth what the disadvantaged were given was not a place in the world but a sort of refugee
camp, where they could go on dreaming the same dreams as before, based on their history of
powerlessness.
As I was finishing this account, I again asked for an interview with
Diane Humenansky, and she again declined. According to her lawyer's office, she does not
want further publicity. Shortly after her lawsuit was concluded, Elizabeth Carlson was
diagnosed with lupus. Taking her two children (her marriage had now ended), she moved to
Florida. There she was also diagnosed with a degenerative joint disorder and a
debilitating rheumatic condition. A few months ago, she had a small stroke. When she goes
out, she has to use a wheelchair. She is forty-four. I asked her whether she blames
herself for her M.P.D-therapy disaster. "No," she replied. "Or not anymore.
It could have happened to anyone. But I'm not as naive as I used to be about trusting
professionals." In 1993, she founded the National Association Against Fraud in
Psychotherapy, and despite her health problems she still works, counseling retractors and
accused families.
How I Perceive and Manage My Illness
Esso Leete (1989), Schizophrenia Bulletin, 15, pp.197-200
Abstract
The article describes some of the ongoing problems psychiatric patients encounter on a
daily basis as perceived by an individual who has lived with schizophrenia for more than
25 years. Specific carefully planned coping strategies which are seen as critical to the
recovery process are presented.
More than by any other one thing, my life has been changed by
schizophrenia. For the past 20 years I have lived with it and in spite of it--struggling
to come to terms with it without giving in to it. Although I have fought a daily battle,
it is only now that I have some sense of confidence that I will survive my ordeal. Taking
responsibility for my life and developing coping mechanisms has been crucial to my
recovery. I would like to share some of these with the reader now.
To maintain my mental health, I found I had to change
my priorities and take better care of myself. I modified my attitudes,
becoming more accepting and nonjudgmental of others. In addition,
I altered my behavior and response to symptoms. I have also had to
plan for the use of my time. When one has a chaotic inner existence,
the structure of a predictable daily schedule makes life easier. Now,
obviously structured activity can be anything, but for me it is work--a
paying job, the ultimate goal. It gives me something to look forward
to every day and a skill to learn and to improve. It is my motivation
for getting up each morning. In addition, my hours are passed therapeutically
as well as productively. As I work, I become increasingly self-confident,
and my self-image is bolstered. I feel important and grownup, which
replaces my usual sense of vulnerability, weakness, and incompetence.
Being a member of the work force decreases stigma and contributes
to acceptance by my community, which in turn makes my life easier.
Research continues to show that one of the differences
between the brain of a "normal" person and one who has schizophrenia
is a major difficulty filtering or screening out background noises.
I am hyper-alert, acutely aware of every sound or movement in my environment.
I am often confused by repetitive noises or multiple stimuli and become
nervous, impatient, and irritable. To deal with this, I make a deliberate
effort to reduce distractions as much as possible.
I often have difficulty interacting with others
socially and tend to withdraw. I have found I feel more comfortable,
however, if I socialize with others who have similar interests or
experiences to my own. To counteract my problem with poor eye contact,
I force myself to look up from time to time, even if I have to look
a little past the person with whom I am speaking. If I do become overwhelmed
in a social situation, I may temporarily withdraw by going into another
room (even the restroom) to be alone for a while.
I attempt to keep in touch with my feelings and
to attend immediately to difficulties, including symptoms like paranoia.
For example, instead of constantly worrying about the police surprising
me, I always choose a seat where I can face the door, preferably with
my back to a wall instead of to other people. In general, instead
of working myself up emotionally over some threatening possibility,
I will check out reality by asking the people I am with questions
like who they are calling, where they are going, or whatever. It clears
the air immediately, and usually I am satisfied with their answer
and can go on about my business. In other words, I cope by recognizing
and confronting my paranoid fears immediately and then moving on with
my life, freeing my mind for other things. Also, I have learned to
suppress paranoid responses, and I make an effort not to talk to myself
or to my voices when others are nearby. It can be done through self-discipline
and practice.
In addition, I suffer from feelings of isolation, alienation, and
loneliness. This is difficult to deal with because on the one hand I need to be with
people, but on the other hand I am frightened of it. I have come to realize my own
diminished capacity for really close friendships, but also my need for many acquaintances.
An ongoing and reliable support system has been extremely important. I have gained much
practical information, insight, and support from my peer-run support group, a very
comfortable means of coming to accept and deal with mental illness. Also, it has been
invaluable to have someone I trust (often my husband) with whom I can "test
reality." I let him know my perceptions and he gives me feedback. I am then able to
consider the possibility that my perceptions may not be accurate, and I modify my response
accordingly if I wish. In this way I can usually acknowledge more conventional ways of
thinking, instead of automatically incorporating outside information into my delusional
system.
A common complaint from persons with a mental illness is that of
impaired concentration and memory. This can make holding a job or even completing a
thought very difficult. To overcome the effects of a poor memory, I make lists and write
down all information of importance. Through years of effort I have managed to develop an
incredible amount of concentration, although I am only able to sustain this for relatively
brief periods of time.
Sometimes, I still find it difficult to keep my thoughts together. 1
therefore request that communication be simple, clear, and unambiguous. It helps me if the
information is specific, as vague or diffuse responses only confuse me. When speaking to
someone, I may need more time to think and understand before responding, and I take this
time. Likewise, I have learned when working on a task to be careful, perhaps taking more
time than others, and to concentrate fiercely on what I am doing. And I must be
persistent.
Many times when becoming acutely ill, I am frightened of everything,
feeling small and vulnerable. When I am in distress, I do whatever makes me feel better.
This may be pacing, curling up into a ball, or rocking back and forth. I have found that
most of these behaviors can be accomplished without appearing too strange, believe it or
not. For example, I can pace by taking a walk, I can curl up when I sleep, and I can rock
in a rocking chair or hammock or even by going to an amusement park. I am often able to
relax by physically exercising, reading, or watching a movie. In general, then, I think I
am discovering how to appear less bizarre.
I find it crucial to schedule time between events
rigidly. For example, I will not agree to give two talks on the same
day. I find I must also give myself as much time as I can in which
to make decisions; I have an enormous amount of ambivalence, and pressure
to come to a decision quickly can immobilize me (It is not a pretty
picture.) Too much free time is also detrimental. Therefore, I find
it useful to structure my leisure time and to limit it. Perhaps some
day I will be able to handle it in greater increments, but for now
I find it best to keep very busy, with minimal amounts of leisure
time.
Perhaps the coping strategy I use the most is compulsive organizing. I
think a controlled environment is probably so important to me because my brain is not
always manageable. Making lists organizes my thoughts. It also increases self-esteem,
because when I have accomplished something and crossed it off my list, it is a very
concrete indication to me that I am capable of setting a goal, working toward it, and
actually accomplishing it. These "small" successes build my confidence to go out
and try other things. As a part of this process, I break down tasks into small steps,
taking them one at a time. Perhaps organizing and giving speeches about my illness is
another coping skill--and the audience response is a type of reality-testing.
In general, then, I believe I do have an irritable brain. I am
supersensitive to any stimulus. My behavior is sometimes erratic, and I am easily
frustrated and extremely impulsive. I regret that I still have times of uncontrollable
angry outbursts. I cope with these and other symptoms by taking low doses of medication.
Before I came to realize the role medications could play in my illness, I was caught in a
vicious circle. When I was off the medication, I couldn't remember how much better I had
felt on it, and when I was taking the medication, I felt so good that I was convinced I
did not need it. Fortunately, through many years of trial and error, I have learned what
medication works best for me and when to take it to minimize side effects based on my
daily schedule. Increasing my medication periodically is one means I often use for
stabilization during a particularly stressful period.
I want to emphasize that stress does play a major
role in my illness. There are enormous pressures that come with any
new experience or new environment, and any change, positive or negative,
is extremely difficult. Whatever I can do to decrease or avoid high-stress
situations or environments is helpful in controlling my symptoms.
In general terms, all of my coping strategies largely consist of four
steps. (1) recognizing when I am feeling stressed, which is harder
than it may sound; (2) identifying the stressor, (3) remembering from
past experience what action helped in the same situation or a similar
one, and (4) taking that action as quickly as possible. After I have
identified a potential source of stress, I prepare mentally for the
situation by anticipating problems. Knowing what to expect in a new
situation considerably lowers my anxiety about it. In addition, I
try to recognize my own particular limitations and plan in advance,
setting reasonable goals.
Please understand that these are the kinds of obstacles that confront
individuals with a psychiatric disorder every day. Yet we are perceived as weak. On the
contrary, I believe we are among the most courageous. We struggle constantly with our
raging fears and the brutality of our thoughts, and then we are subjected as well to the
misunderstanding, distrust, and ongoing stigma we experience from the community. Believe
me, there is nothing more devastating, discrediting, and disabling to an individual
recovering from mental illness than stigma.
Life is hard with a diagnosis of schizophrenia. I can talk, but I may
not be heard. I can make suggestions, but they may not be taken seriously. I can report my
thoughts, but they may be seen as delusions. I can recite experiences, but they may be
interpreted as fantasies. To be a patient or even ex-client is to be discounted. Your
label is a reality that never leaves you; it gradually shapes an identity that is hard to
shed. We must transform public attitudes and current stereotypes. Until we eliminate
stigma, we will have prejudice, which will inevitably be expressed as discrimination
against persons with mental illness.
We rarely read about people who have successfully dealt with their
emotional problems and are making it, and they will not usually identify themselves to us
because they are all too aware of the general attitude. The current image the public has
of the mentally ill must be changed, not to mention that of the individual himself. We
have grown up in the same society and have the same feelings about mental illness, but we
must also live with the label.
Ultimately, we must conquer stigma from within. As a first step--and a
crucial one--it is imperative for us as clients to look within ourselves for our
strengths. These strengths are the tools for rebuilding our self-image and thus our
self-esteem. I found that I first had to convince myself of my worthiness, then worry
about others. Each time I am successful at a task it serves to reinforce my own
capabilities and boost my confidence. Just this way, persons with mental illness can and
must change the views and expectations of others.
Obviously, education about mental illness is critical for all parties
involved, especially for the patient. I have made an extensive study of my disorder and
have found education invaluable in understanding my illness, coming to terms with it, and
dealing with it. We must conscientiously and continually study our illnesses and learn for
ourselves what we can do to cope with the individual disabilities we experience.
Many of us have learned to monitor symptoms to determine the status of
our illness, using our coping mechanisms to prevent psychotic relapse or to seek treatment
earlier, thereby reducing the number of acute episodes and hospitalizations. My own
personal warning signs of decompensation include fatigue or decreased sleep; difficulty
with concentration and memory; increased paranoia, delusions, and hallucinations;
tenseness and irritability; agitation; and being more easily overwhelmed by my
surroundings. Coping mechanisms may include withdrawing and being alone for awhile;
obtaining support from a friend; socializing or otherwise distracting myself from
stressors; organizing my thoughts through lists; problem-solving around specific issues;
or temporarily increasing my medication. Yet too many times our efforts to cope go
unnoticed or are seen as symptoms themselves. If others understood us better, perhaps they
would be more tolerant. We did not choose to be ill, but we all choose to deal with it and
learn to live with it. By learning to modulate stress, we will more effectively manage our
illness, thus endowing ourselves with an ongoing sense of mastery and control. I find my
vulnerability to stress, anxiety, and accompanying symptoms decreases the more I am in
control of my own life. Unfortunately, our progress continues to be measured by
professionals with concepts like "consent" and "cooperate" and
"comply" instead of "choose," insinuating that we are incapable of
taking an active role as partners in our own recovery.
I see my schizophrenia as a mental disorder with a genetic
predisposition, predictably expressing itself in times of extreme stress, but often
exacerbated by rather ordinary fluctuations in my environment. Mental illness is a
handicap with biological, psychological, and social ramifications, making it a formidable
obstacle to be overcome, I understand that life may be more difficult for me than for
others and that I must preside over it more attentively for this reason. As with other
chronic illnesses, it has demanded that I work harder than most. I know to expect good and
bad times and to make the most of the good. I take my life very seriously and do as much
with it as I can when I am feeling well, because I know that I will have difficult times
again and will likely lose some of my gains.
Although there is no magic answer to the tragedy of mental illness, I
contend that we need not be at its mercy. Appropriate treatment can help us understand our
disease and we can learn to function in spite of it. We can overcome our illness and the
myths surrounding it. We can successfully compensate for our disabilities. We can overcome
the stigma, prejudice, discrimination, and rejection we have experienced and reclaim our
personal validity, our dignity as individuals, and our autonomy. To do this, we must
change the image of who we are and who we can become, first for ourselves and then for the
public. If we do acknowledge and seriously study our illnesses, if we build on our assets;
if we work to minimize our vulnerabilities by developing coping skills; if we confront our
illnesses with courage and struggle with our symptoms persistently--we will successfully
manage our lives and bestow our talents on society, the society that has traditionally
abandoned us.
The Author
At the time of the writing of this article, Esso Leete was the director and founder of the
Denver Social Support Group and Program Director of Consumer Centered Services of
Colorado. As a primary mental health consumer, she has been on many local committees and
boards, as well as being the Vice President of the Client Council of the National Alliance
for the Mentally Ill. She has been designated as a national Switzer Scholar and has
received an award for the most outstanding consumer advocate in Colorado for the last 25
years. |