Noteworthy News Articles on Mental Health Topics, November 17-24, 2002
Preschool Meds
Sheryl Gay Stolberg, New York Times Magazine- 11/17/2002
On a warm, breezy Friday in September, a parade of mothers in minivans arrived at a
preschool in suburban Connecticut to drop off a collection of 4-year-olds. Among the young
students was Sam G., a sturdy, big-eared boy with cheeks that flush easily and a
personality that has earned him a reputation, politely speaking, as a handful. Like most
4-year-old boys, Sam loves things that move -- trains, planes and trucks, especially fire
trucks -- and is usually on the move himself. When he enters a room, his clear blue eyes
dart about, as though he cannot take in the sights fast enough. His knees and elbows are
perpetually scraped. When his teachers read stories aloud, Sam often wanders about.
This particular Friday was no exception. It was
Bring-Your-Stuffed-Animal-to-School Day, and Sam burst through the door carrying a
two-foot-tall black-and-white cow he calls Moo. Surveying the scene, he paused momentarily
and then, as if someone had lighted a fuse underneath him, thrust his arms forward and
began zipping around the room, the cow acting as his shield. During the next two hours,
Sam tried to open the childproof window locks; he got into fights in the sandbox and
repeatedly stood in the center of the room, swinging the cow by its tail. When his teacher
finally put the animal on the shelf "for a nap," Sam burst into tears.
Time was, Sam's rambunctiousness would have been chalked up to childhood
or, more precisely, boyhood. Today, Sam has a diagnosis -- attention deficit hyperactivity
disorder, and a potential treatment: methylphenidate, a drug better known by its brand
name, Ritalin. Sam has been taking the drug, in various doses that are interspersed with
dummy pills, since July as part of the three-year Preschool ADHD Treatment Study, known as
PATS. This unusual clinical trial is financed by the National Institute of Mental Health
and overseen by the New York State Psychiatric Institute in Manhattan. The institute,
which is affiliated with Columbia Presbyterian Medical Center, is one of six academic
medical centers around the country that have been recruiting children since January 2001.
The aim is to enroll 314 children by February. Results are expected sometime in 2004.
The research may be the most controversial medical experiment the
federal government has ever conducted in children: a study of the safety and effectiveness
of generic Ritalin in pre-schoolers, ages 3 to 5. Experimenting on children is always
delicate, especially when the children are barely out of diapers. Ritalin, marketed to
help hyperactive students focus in school, is a stimulant, and though it is generally
considered safe, scientists acknowledge they do not understand how it affects young
children's developing brains. The drug is not approved for children under age 6. But
doctors increasingly prescribe it to them "off label" -- a worrisome trend, yet
hardly surprising in an era when 3-year-olds are expected to know their numbers and
5-year-olds are being taught to read.
"We have an obsession with performance in our country," says
Lawrence Diller, a behavioral pediatrician in Walnut Creek, Calif, and the author of two
books on A.D.H.D. "We have a universal performance enhancer in Ritalin. It helps
anyone, child or adult, A.D.H.D. or not, to perform better. It was inevitable that there
would be this drift down to the 3- to 5-year-old set."
Darlene and Brian G., who insisted that their last names not be used to
protect Sam's privacy, had struggled for years to have a child. Darlene, a compact
51-year-old woman with blond hair and jade-green eyes, was 39 when she married Brian, an
engineer 13 years younger than she is. In 1997, having exhausted their emotional and
financial resources on in vitro fertilization, they decided to adopt. Sam was born Dec. 18
of that year to a 17-year-old. Only later would the couple learn that their son's
biological mother, as well as some of her relatives, had been given the diagnosis of
attention deficit hyperactivity disorder.
By the time Sam started walking, two things about him were clear: he was
fearless and always on the go. When he was 2, Sam climbed onto the dining-room table and
tried to swing from the ceiling fan. He switched on the electric stove, then stretched his
little body across the burners. He tripped the latch on a sliding-glass door, then let
himself out on the second-story balcony. Darlene yanked him back as he was about to topple
over the rail.
Brian thought Sam was just being a boy, and the pediatrician seemed to concur. When
Darlene asked about testing for hyperactivity, he told her to wait until Sam was 5 or 6,
and in school. "If I live that long," she shot back. When Sam was 3, the
director of his preschool called to say that Sam had raised his fists to her "and we
can't have that kind of behavior here." Darlene, upset yet relieved that someone else
had seen what she saw, called Brian in tears. "He's going to get kicked out of
preschool," she told him. "He's only 3!"
A local psychologist diagnosed A.D.H.D. in Sam and recommended therapy.
Darlene, a believer in holistic medicine, also took Sam to a naturopath, who tested him
for food sensitivities and severely restricted his diet: no wheat, dairy, gluten, corn
syrup or food additives. The entire family gave up pizza. At school birthday parties, Sam
got soy ice cream.
By the time Sam turned 4, the family's insurance coverage for the
therapy was running out. Then Darlene's cousin alerted her to an advertisement in The New
York Daily News. "Is your preschooler just too active?" the ad asked. It
promised "a comprehensive evaluation by our study team, as well as up to 14 months of
treatment --all at no cost."
The man behind the advertisement was Laurence L. Greenhill, a
61-year-old child psychiatrist at the Psychiatric Institute on Riverside Drive in New York
City. Square-shouldered and stocky, with wire-rimmed glasses and dark wavy hair that he
slicks down for speaking engagements, Greenhill is what pharmaceutical companies call a
K.O.L. -- key opinion leader -- which means he conducts the cutting-edge drug research
that shapes prescribing decisions for thousands of ordinary doctors who treat A.D.H.D. He
is serious almost to the point of being humorless, a trait that colleagues say serves him
well. "Among people who do work like this, studies on the very young, the very sick,
there is no shortage of cowboys," says Steven Hyman, who was the director of the
National Institute of Mental Health at the N.I.H., when the study was approved.
"Larry Greenhill is not a cowboy."
Greenhill came of age in psychiatry at a time when medical experts were
beginning to regard hyperactivity as not simply a behavioral disorder but a condition with
a biological basis, akin to asthma or diabetes, that could be corrected with medicine. In
1998, having already helped lead a landmark study of Ritalin in school-age children, he
turned his attention to preschoolers. In November 1999, the National Institute of Mental
Health agreed to finance his preschool study. But before the money was released, a
scientific landmine exploded in the middle of the long-running Ritalin debate. In February
2000, The Journal of the American Medical Association reported a twofold-to-threefold
increase in the use of stimulant drugs, particularly methylphenidate, among 2- to
4-year-olds. The study, by Julie Magno Zito, a pharmacy professor at the University of
Maryland, did not shock doctors who treat A.D.H.D. But it did shock the public.
"Those of us who have been prescribing medication since the 70's had been watching
this huge increase," Lawrence Diller says. "Zito's piece put it on the front
page of every newspaper."
Hillary Clinton, still first lady but running for Senate in New York,
demanded to know what the government was doing about it. Hyman told her about Greenhill.
Within weeks, the White House had announced a major initiative to reduce the use of
stimulants among the very young. The preschool study was a central component.
Critics argue that the trial may, in fact, increase stimulant use,
legitimizing it for children who are not as closely monitored as Sam. But Hyman defends
his decision to go ahead, given that so many preschoolers are already on the drug.
"If we can do these trials right," he says, "we are damnable if we don't do
them. Because if we don't do them, then every child becomes an uncontrolled experiment of
one."
To Peter Breggin, the nation's best-known A.D.H.D. critic, the study
marked "a tragedy for America's children." A soft-spoken, silver-haired
psychiatrist, Breggin is the author of more than a dozen books, including "Talking
Back to Ritalin." With his gentle manner and frequent television appearances, Breggin
puts forth an appealing -- and, Greenhill contends, troubling -- message: attention
deficit hyperactivity disorder is a figment of modern psychiatry's imagination.
Flipping through the fourth edition of the Diagnostic and Statistical
Manual of Mental Disorders on a recent afternoon, Breggin read aloud from its list of
A.D.H.D. symptoms: "Often fails to give close attention to details or makes careless
mistakes in schoolwork. Often fidgets with hands or feet or squirms in seat. Often blurts
out answers before questions have been completed." He scowled. "There is no
disease," he said flatly. "It's a list of behaviors that annoy adults."
On January 23, 2002, Sam and his parents made the first of what would
become weekly visits to the psychiatric institute. They had come to meet Dr. Janet
Fairbanks, the child psychiatrist and colleague of Greenhill's who would evaluate Sam.
Diagnosing A.D.H.D. is difficult with any child, but with preschoolers, who tend to be
active and impulsive, it is especially hard. The medical literature suggests A.D.H.D. is
often overdiagnosed and overtreated, which is one reason Breggin's arguments have gained
so much currency.
Contrary to the perception that Ritalin is being used as a kind of
"chemical handcuff " for inner-city kids, studies show the drug is most often
prescribed to white suburban boys -- in short, kids like Sam. Sensitive to the
controversy, the mental-health institute insisted that Greenhill's team require parenting
training: 10 weeks of classroom instruction in behavior modification. Children who show
little or no improvement at the end of the 10 weeks then become eligible for medication.
The team also set strict limits on who can enroll, taking only the most
severely affected children. Fairbanks knew right away Sam would qualify. The electric
stove story, she says, was a big tip-off. "He has no sense of danger, which is
characteristic of these kids, which is why they get hurt a lot. It's curiosity, combined
with no impulse control."
By April, the psychiatric institute had recruited enough children, 13 in
all, including a set of 3-year-old twins, to begin its next round of parent training. The
course was led by Tova Ferro, a clinical psychologist who herself was expecting a child.
On the night I sat in, the lesson was timeouts. Ferro popped a video into a recorder, and
a man appeared on the television screen, begging his toddler to put away her toys amid
lame threats of a timeout. Ferro asked what the father had done wrong. "He was a
wimp," one mother piped up. Ferro agreed. She advised the parents to make a list of
behaviors serious enough to warrant a timeout. Every family is different, she told them.
"Think about what makes sense for you." Although her goal is to help parents
improve their children's behavior, Ferro is under no illusions. "Some children will
need additional interventions," she said. Translation: Some will need drugs.
For Brian and Darlene, the parent training was mostly a review of what
they had already picked up in parenting books, though they enjoyed the emotional support.
But as with every other aspect of the PATS clinical trial, the parent training, modeled on
a Canadian program, has critics. Among them is William E. Pelham Jr., director of the
Center for Children and Families at the State University of New York at Buffalo. At his
center, Pelham offers intensive training for teachers and summer camp for hyperactive kids
-- programs that he says help as many as 75 percent avoid medication. He says that
Greenhill's less intensive training is set up to fail. "I bet you 100,000 bucks I
could tell you the results of that trial," Pelham said. "The results will be
that kids need medication because parent training is not enough. I think that's dangerous.
It is going to send a message to people that young children need medication." But the
cold truth, says Hyman, the former director of the mental-health institute, is that few
Americans could afford the kind of help Pelham offers. "We were very concerned,"
he said, "that any behavioral therapy that came out of this trial had to be
generalizable."
In Sam's case, the training was of little help, and the question of
whether to put him on medication was much on his parents' minds throughout the 10-week
session. On Sam's good days, Darlene was convinced she should hold out until he started
school. On bad days, she was ready to cave. In the end, it was Brian who made the
decision. He liked the idea that Sam would be carefully monitored, that his medication
would be increased only gradually until doctors determined the optimal dose, which he
would take for 10 months. The father who once insisted his son was just being a boy had
come to accept him as a boy with a problem. "My eyes," Brian said, "have
been opened."
Sam started the medicine on the first Saturday in July. The following
Friday, he strutted into the institute wearing one of his many fire truck shirts. His
mother was glowing. "Today," Darlene announced, "was wonderful." In
keeping with the study requirements, Fairbanks started Sam on an extremely low dose, 1.25
milligrams of methylphenidate, once a day. Every two days, the dose went up; by Thursday,
Sam was on 7.5 milligrams once a day, still much less than the study's maximum dose of 7.5
milligrams three times a day. Darlene had given him the medicine, a tiny white pill, in a
bowl of applesauce at 10 a.m. At 10:45, she ran a little experiment. She offered Sam a
spray bottle of pet deodorizer and asked him to help her spray the couch. To his mother's
astonishment, Sam did not run around the house squirting everything in sight. He stood in
front of the couch and sprayed the cushions. Later, on a trip to the drug store, Sam asked
if he could get a toy. When Darlene told him he would have to wait, he said, "O.K.,
Mom." She nearly burst into tears.
By 2 p.m., the magic was over. The medicine was wearing off. In the car
on the way to their appointment, Sam was looking at a newspaper when Darlene heard the
sound of paper crumpling. She asked Sam not to tear the paper, but he couldn't stop. Soon,
his whole body was in motion, feet jangling, fingers wiggling.
That Friday, in Fairbanks's cramped office, the family squished next to
one another on the psychiatrist's couch, all of Darlene and Brian's hopes and fears came
spilling forth. They wondered aloud how they might channel Sam's impulsiveness and lack of
fear. He could be an explorer, Darlene suggested. An astronaut, Fairbanks chimed in.
"I want him to be a leader," Brian said finally. "I want him to follow his
dreams." Later, they took Sam out for pizza in the city, a rare treat. "I am
starting to go on Ritalin," he announced. "They're these little tiny pills.
They're for to help me." Help you with what? I asked. "To help me with
helping," he replied, as if this were the most obvious thing in the world. "With
helping and listening." Then a bus rumbled by on Broadway, and Sam turned to look.
Soon, he was out of his seat, darting for the door, his father calling out after him. It
would be another 15 hours before his next little white pill.
It was a difficult summer -- "a roller coaster," in Brian's
words. The trial followed a complicated double-blind crossover pattern, with the doses,
and hence Sam's behavior, changing week to week. While outside experts charted Sam's
responses, Sam's parents and doctors were kept in the dark. Darlene, though, wasn't
fooled. The week Sam played Boggle Jr., a spelling game, for 30 minutes, was a high-dose
week. The week he opened the childproof bottle of Clorox and accidentally doused himself
in bleach ("I wanted to help you with the laundry," he told Darlene) was the
placebo week.
By September, things had grown even more complicated. During a high-dose
week, Sam developed a tic -- a common and disconcerting side effect. It began subtly, an
odd, occasional rolling of the shoulder, as though Sam were trying to wriggle out of his
shirt. It didn't bother him, or his parents, until a few days after Labor Day, during a
family trip to Cape Cod. They were eating lunch when Darlene spotted Sam's arms going,
first his left, then his right. His eyes grew big; his expression went blank. When she
asked Sam to squeeze her hand, he couldn't; his own hand was curled up in a feeble knot.
For two hours, Darlene and Brian watched their son deteriorate until, just as suddenly as
it began, the twitching subsided. Frightened, they temporarily stopped the medication.
These kinds of reactions, Greenhill says, are just what his team is
looking for, although the cause of Sam's tic remains unclear. It could be a side effect
that goes away when the child stops taking the drug. Or Sam may have a tic disorder, which
sometimes occurs alongside A.D.H.D. And there is also another, more troubling possibility,
Fairbanks says: "Does the medicine somehow release something that was a
vulnerability? And will it continue after the medication is stopped?"
The tic prompted Fairbanks to ask Sam's parents if they wanted to
withdraw him from the trial. But Darlene and Brian, who once worried so much about putting
their son on medication, did not want to take him off. "It's too soon to give
up," Brian said. Today, Sam takes his optimal -- and much lower -- dose. The
occasional shoulder roll remains.
Fairbanks has seen this kind of determination before. The parents of two
of her patients were crushed when their children had to leave the trial because of
appetite loss and insomnia, side effects of the medication.
In his own way, Sam seems to sense his parents' dilemma. On the drive
back to Connecticut after a recent visit with Dr. Fairbanks, he pointed out the George
Washington Bridge and talked about the pumpkin garden he had planted. Then he declared
that he had become a parent. "I have a child," he said, in his serious, earnest
way. "His name is Billy. He just turned 3. He knows all his alphabets. He knows at
school when recess time is on. He knows when the bell rings, and they're going out. He
listens to his teachers. He cleans up when he's supposed to." It did not take a child
psychiatrist to figure out that, in his imagination, Sam had neatly created the boy he
hopes to be.
Judge: Detox Doctors Not Negligent
Linda A. Johnson, Associated Press- 11/18/2002
TRENTON, N.J. -- Two doctors who practiced a method of rapidly detoxifying narcotics
addicts were not negligent in the deaths of seven patients, but their licenses should be
briefly suspended, a state judge has ruled. Prosecutors had charged Drs. Lance Gooberman
and his assistant, David Bradway, with gross and repeated malpractice, negligence,
incompetence and professional misconduct. Prosecutors were seeking to revoke their medical
licenses. The charges were filed after the deaths of seven of the more than 2,350 heroin
and other addicts Gooberman and Bradway treated from May 1995 to September 1999 at U.S.
Detox Inc. in Merchantville. The doctors denied any wrongdoing.
After a lengthy trial, Administrative Law Judge Jeff S. Masin ruled late
Friday that the prosecution had not proved any serious charges, saying the doctors
generally acted in good faith. He recommended that each have his license suspended for six
months for violations of several medical standards, followed by two years' probation
during which their records would be reviewed, particularly if they resumed the rapid
detoxification treatments. The violations include inadequate record keeping, in some cases
encouraging some patients to allow their cases to be described in publicity materials for
the business and not telling early patients that the procedure was considered
experimental.
Gooberman said Monday he plans to challenge those findings. ''I'm really
excited about the decision,'' he said. ''It vindicated rapid detoxification. It was
important for me to hear that we didn't hurt anybody and we acted in good faith.''
The state attorney general's office is reviewing Masin's ruling to
determine whether to file any exceptions. Masin also recommended that Gooberman pay a
total of $11,500 in civil penalties, Bradway pay a total of $14,000 in civil penalties,
and they together pay one-third of the costs for investigation of the case by the state
Board of Medical Examiners. The board polices doctors licensed in the state and must
review Masin's ''initial judgment.'' It can accept his findings, reject them or modify
them.
In his ruling, Masin wrote that there was nothing intrinsically
''inappropriate or especially dangerous'' about the doctors' rapid opiate detoxification
procedure. It uses medications to rapidly flush drugs out of addicts' bodies while they
are under anesthesia for about four hours, getting them over the worst of withdrawal
symptoms such as diarrhea, cramps and tremors that normally would last for several days.
The method has been widely used in Europe and Israel, but is relatively new in the United
States. Doctors in six states offer the treatment. Gooberman and Bradway have been barred
from performing the procedure since September 1999. The trial began in January 2001 and
continued through June 2002.
On the Net: http://lancegooberman.com/
Michigan Closing State Mental Hospital
Amy F. Bailey, Associated Press- 11/19/2002
LANSING - One of Michigan's four adult mental hospitals will close next year, sending
about 250 patients to other facilities or programs, the state health department said
Monday. The state has been planning to close the Northville Psychiatric Hospital by 2006,
but it expedited the closure after more than 100 of the facility's 540 Workers took an
early retirement offering by the state, said Geralyn Lasher, spokeswoman for the
Department of Community Health. "It made more sense to close the facility now,"
she said. The hospital serves adults from Livingston, Monroe, Shiawassee, Washtenaw and
Wayne counties.
Mark Reinstein, president and CEO of the Mental Health Association in
Michigan, said that without the Northville hospital, the state won't have enough
facilities for people suffering from a mental illness. "It's not something that the
state should be doing at this point," Reinstein said. "Even with Northville
there weren't enough beds."
After Northville's closure -- expected by July 2003 -- the state will
have three adult mental health facilities: Walter Reuther Psychiatric Hospital in
Westland, Kalamazoo Psychiatric Hospital in Kalamazoo and the Caro Center in Caro. The
state's other mental health facilities are the Mount Pleasant Center for people with
developmental disabilities and the Hawthorn Center in Northville for children.
Additional community-based programs throughout the state and the
development of psychotropic drugs reduce the need to institutionalize people with mental
health disabilities, Lasher said. Depending on patients' treatment plans, they will be
transferred to another instittion, group home, community-based treatment program or home
with their families, Lasher said.
In August, the Michigan Protection and Advocacy Service filed a lawsuit
accusing state workers of inappropriately discharging patients from the Northville
hospital earlier this year. A hearing for the case is scheduled next week in Ingham County
Circuit Court. In one case, a man didn't receive the constant supervision he needed and
died after suffering a heart attack because he ate too much, said Mark Cody, senior
attorney for the advocacy service. "The plans weren't being developed and those that
were developed weren't implemented," Cody said. "We said, `Look, these aren't
going well, there are problems.'"
Dave L LaLumoa, director of the Michigan Association of Community Mental
Health Boards, said he thinks there's enough time before the Northville facility closes to
find a place for every patient. "The key to this is to make sure that there's a plan
in place for each of the residents so no one is left on the street," he said
The Department of Community Health on Monday provided certification of
Northville's closure to the state Legislature. In March, the closure plan will be
submitted to House and Senate appropriations committees. State Rep. Virgil Bernero, a
Lansing Democrat, said the department is going back on its promise to lawmakers to keep
the hospital open for three years after it sold the property around the hospital. Bernero
said he would have preferred the department hold off on any closures until Gov.elect
Jennifer Grahholm takes office January 1.
A Boy, a Mother And a Rare Map of Autism's World
Sandra Blakeslee, New York Times- 11/19/2002
LOS ANGELES - Tito Mukhopadhyay sits in a darkened laboratory, pointing at flashes of
light on a computer screen. On his right is a neuroscientist, one of several who are
testing Tito's ability to see, hear and feel touch. At his left, Tito's mother, Soma,
watches quietly. Tito, who is 14, often stops the testing with bursts of activity. His
body rocks rhythmically. He stands and spins. He makes loud smacking noises. His arms fly
in the air as if yanked by a puppeteer. His fingers flutter. Everyone waits. Tito reaches
for a yellow pad and writes to explain his behavior: "I am calming myself. My senses
are so disconnected, I lose my body. So I flap. If I don't do this, I feel scattered and
anxious."
Tito has severe autism, a disorder that occurs when the brain
mysteriously fails to develop normally in infancy and early childhood. Born and raised in
India, Tito speaks English with a huge vocabulary. His articulation is poor, and he is
often hard to understand. But he writes eloquently and independently, on pads or his
laptop, about what it feels like to be locked inside an autistic body and mind.
"Tito is a window into autism such as the world has never
seen," said Portia Iversen, a cofounder of Cure Autism Now, a Los Angeles research
foundation that brought Tito and Soma to the United States in July 2001 and continues to
support them. Autism experts are studying him, amazed to discover, for what they say is
the first time, a severely autistic person who can explain his disorder. "Tito is for
real," said Dr. Michael Merzenich, a neuroscientist at the University of California
at San Francisco Medical School, who has run extensive tests on Tito. "He
unhesitatingly responds to factual questions about books that he has read or about
experiences that he has had in detail and in high fidelity." "I've seen Tito sit
in front of an audience of scientists and take questions from the floor,"said Dr.
Walter Belmonte, a neuroscientist and an autism expert at Cambridge University. He taps
out intelligent witty answers on a laptop with a voice synthesizer. No one is touching
him. He communicates on his own."
Nor is Tito a savant, an autistic person with a single extraordinary
talent like the mathematically gifted character in the movie "Rain Man."
"Tito thinks and feels and has opinions '" like all the rest of us," said
Dr. Samuel Smithyman, a psychologist in Los Angeles who is Tito's personal analyst.
"He defies the assumptions we have about autism."
Tito was assessed with well-validated diagnostic tests and meets all the
criteria for autism, said Dr. Sarah Spence, a pediatric neurologist at the University of
California at Los Angeles. Like many autistic children, Tito appeared to develop normally.
He learned to sit and walk like other babies. But by the time he was 18 months old, he was
showing signs that he was not like other toddlers, especially in the way he distanced
himself from social settings and did not talk. After his severe autism was diagnosed at
age 3, Soma decided to educate him anyway, using methods she would make up as she went
along. "I saw that Tito had very good memory with roads, position of objects in the
room, and also he would make complex patterns with match sticks," said Soma, as she
pr-fers to be called. "I just wanted to divert his interests toward communication and
learning."
For 10 years, she and Tito lived in small apartments in Mysore and
Bangalore, where she taught him, day and night. Although Tito wanted to hide in a corner
and watch a ceiling fan, Soma took him for daily walks amid the colors, smells and sounds
of local markets. Tito's father, who lived and worked in a distant city, visited
occasionally. Soma first taught Tito to recognize letters and sounds on an alphabet board,
choosing English over more difficult Indian dialects. Then she tied a pencil in his hand
and showed him how to make each letter, often refusing to let him eat until he could do
so.
Around then, a method called facilitated communication, in which a
parent or teacher holds the wrist of an autistic person as he or she taps messages on
computer keys, had been widely discredited. Critics said teachers were prompting autistic
people to respond through a kind of Ouija board effect. "I was desperate to show
people that Tito's poems came from him and not me," Soma said. "I put myself in
other people's shoes and knew we needed genuine proof that he could write
independently." The mother also read Tito stories and books -- Aesop's fables, Thomas
Hardy novels and the complete works of Dickens and Shakespeare -- and demanded that he
write his own stories in return. Tito continues to write poetry and essays every day. His
first book, "Beyond the Silence," was published two years ago in Britain by the
National Autistic Society. "I need to write," he said recently, scrawling the
words on a yellow pad. "It has become part of me. I am waiting to get famous."
Since traveling to the United States, Tito has visited six laboratories
for neurological testing. Because he cannot hold still long enough for brain imaging, he cannot offer researchers pictures of his mind in action.
Instead, he gives them clues about his mental states in poems and essays that can then be
explored in specially created tests. "When I was 4 or 5 years old," he wrote
while living in India, "I hardly realized that I had a body except when I was hungry
or when I realized that I was standing under the shower and my body got wet. I needed
constant movement, which made me get the feeling of my body. The movement can be of a
rotating type or just flapping of my hands. Every movement is a proof that I exist. I
exist because I can move."
Tito seems to lack a sense of his own body, the kind of internal map,
Dr. Merzenich said, that normal children develop in their first few years. The maps
involve brain regions that specialize in the sense of touch and movement and are widely
connected to other areas, and they are highly dynamic throughout life, changing in
response to everyday experience.
By imaging the brains of higher functioning autistic people who can stay
still in scanners, researchers in the laboratory of Dr. Eric Courchesne at the University
of California at San Diego found that autistic people had mixed-up brain maps. Although a
normal person, for example, has a well-defined brain area that specializes in face
recognition, some autistic people have face-recognition areas in parts of the brain like
the frontal lobes, where no one had dreamed they could be laid down. The same is true of
maps that help plan movements. This means body maps are formed in autistic children, but
they may be scrambled differently in each person.
In imaging experiments starting at the University of California at San
Francisco, Dr. David McGonigle, a radiologist, is exploring the hypothesis that some
autistic children may have scrambled body maps. Many cannot identify parts of their bodies
in a mirror. Even if they know "nose," for example, when asked to point at the
nose they may put a finger to an ear, They also tend to be clumsy. With eyes closed while
standing, they wobble and stagger. Ms. Iversen, whose 10-year-old son, Dov, is severely
autistic, notes that maps for face recognition form early. "I smile, you smile, and
maps are formed," she said. But if you do not have a faithful mental map of your own
face and body, she said, you cannot read the expression on someone else's face.
The inability to interact socially is a core problem in autism. People who
lack normal body maps may not be able to build consistent mental models of the world, Dr.
Bel-monte said. They may not be able to integrate sights, sounds, smells, touches and
tastes. This is what Tito is talking about when he writes that he cannot perceive the
world with more than one sense at a time. "I can concentrate either at what I am
seeing or what I am hearing or what I am smelling," he wrote, not long after he began
meeting neurologists. "It felt nothing unnatural to me until I realized that others
could simultaneously see and hear and smell."
In Dr. Merzenich's lab, Tito has had extensive testing to explore his
unusual perception. Sitting in a darkened room, he listens to beeps followed by flashes of
light on a computer screen. Most people can sense the sound and the light, even when they
are separated by only a fraction of a second. But unless the light follows the sound by a
full three seconds -- an eternity for most brains -- Tito never sees it. "I need time
to prepare my ears," he told Dr. Merzenich. "I need time to prepare my eyes.
Otherwise the world is chaos."
Tito says that people with autism, at least those who are like him,
choose one sensory channel. He chose hearing. Most of the time, Tito attends to the sounds
of language and to oral information, which may help explain his gift for poetry. Vision,
Tito said, is painful. He scans the world with his peripheral vision and rarely looks
directly at anything. Other autistic people like Dr. Temple Grandin, a professor at
Colorado State who earned a doctorate in animal science, spe-cializes in vision.
"When I talk about anything new, I have to look at the picture in my mind, and then
language narrates it like a slide show." Dr. Grandin said when she met Tito in Dr.
Merzenich's lab, where they were tested side by side in September.
For Tito, willing his body to do things is a particular problem, Soma
said. "If he's sitting on the couch and I ask him to go to the kitchen, he cannot do
it," she added. "But if he hears me open a bag of cookies, he moves like a
gazelle on pure impulse." That is another sign that Tito's brain is disconnected, Dr. Merzenich said. Children
gradually develop higher circuits to control their impulses as the frontal lobes mature
and connect to circuits that developed earlier. Each stage rests on earlier circuitry; if
that is abnormal, later-to-develop regions may never be organized correctly.
Still, Tito's behavior and writings dispel a popular notion that
autistic children do not feel empathy, Ms. Iversen said. Tito has feelings and notices
emotions, she said, but he can be stoic about his disorder. When a mother at a large
autism meeting asked Tito for his advice to parents, Tito replied simply, "Believe in
your children."
Most experts say they believe that abnormalities in several genes
contribute to developing autism, along with environmental factors that have yet to be
fully identified. Many parents say the first symptoms, like the lack of eye contact, as in
Tito's case, do not appear for about 18 months. This accident of timing has led some to
associate vaccines given at that age with the onset of autism. But it is equally
plausible, many experts say, that the symptoms appear at that time because that is when
the brain naturally reaches new levels of complexity. If primary sensory regions like the
auditory cortex have prenatal defects, entire pathways of subsequent brain organiza-tion
would not form properly.
Researchers have measured swarms of electrical discharges in the primary
hearing regions of autistic children while they sleep. Such epilepsy-like activity may
affect the way the brain organizes its circuitry in childhood. Others note that the brains
of autistic children are larger than average and that the brain's basic building blocks,
called cortical columns, contain many more cells than normal and make excess connections
to other cells. Such hyper-connectivity may cause autistic children to become overwhelmed
by details because their minds are never free to integrate the whole picture. Moreover,
their brains are wired in such a way that they are prone to associate things that do not
normally go together. Tito says that at 4, he was looking at a cloud when he heard someone
talking about bananas. It took him years to realize that bananas and clouds were
different.
As researchers continue to study Tito, Soma works with a small number of
children in Los Angeles to see whether her teaching methods can help others. Unlike many
educators who try to slow things for autistic children, Soma demands rapid responses,
which she says prevent the child's brain from being distracted. It is too soon to tell
whether she will succeed. But parents like Ms. Iversen have been impressed. When her son
first used the spelling board, Dov broke his muteness, asking far a navy blue blazer and
algebra lessons. When she asked him what he had been doing all those years when he
couldn't communicate, he pointed out letters to spell "listening."
The Mind Tree
Maybe it is night
Maybe it is day.
I can't be sure
Because I am not yet feeling the heat of the sun.
I am the Mind Tree.
When I had been gifted this mind of mine
I heard "his" voice very clearly.
"To you I have given this mind
And you shall be the only kind
No one ever will like you be
And I name you, The Mind Tree."
I can't see or talk.
Yet I can imagine.
I can hope and I can expect.
I am able to feel pain, but I cannot cry.
So I just be.
And wait for the pain to subside.
I can do nothing but wait.
My concerns and worries
Are trapped within me somewhere in my depths.
Maybe in my roots
Maybe in my bark.
When "he" comes next, who gifted me my mind
I shall ask him for the gift of sight.
I doubt his return and
Yet hope for it
Maybe he will
Maybe he will not.
TITO MUKHOPADHYAY
Two Perspectives on Suicide
John Langone, New York Times- 11/19/2002
"No Time to Say Goodbye: Surviving the Suicide of a Loved One," by Carla
Fine, Broadway Books, $12.95.
"How I Stayed Alive When My Brain Was Trying to Kill Me: One Person's Guide to
Suicide Prevention," by Susan Rose Blauner, William Morrow, $24.95.
Whether a calculated ultimate protest or a depression-blinded act, suicide is what it
is, a desperately arrived at dead end. For the person tormented by the obsession, it may
mean numerous attempts, psychiatric wards and mood-altering drugs. For the victim's loved
ones, it is a source of confusion and questions of lingering grief, guilt, shame and
anger.
These helpful books deal with suicide, the eighth leading cause of death
in the United States, from two perspectives. Ms. Fine looks at those left behind; Ms.
Blauner looks inward at someone who survived 18 years of suicidal obsession and three
suicidal gestures. Each does much to lighten the anguish that suicide and contemplating it
spawn.
Ms. Fine's husband, a doctor, killed himself on his examining table with
a powerful anesthetic. Unable to confront the circumstances of his death openly, the
author told most people that he died of a heart attack. Her book takes readers from the
initial impact of the suicide, when "the world explodes," through the search for
explanations. It culminates in ways to make "sense of the chaos."
With acceptance and acknowledgment of the anger that many survivors feel
at being rejected by a loved one, she is able to conclude, "Unlike our loved ones,
whose pain was so enveloping that they were unable to hear our shouts of help, we refuse
to be exiled by despair." For Ms. Blauner, "letting go of suicide was the
hardest thing I've ever had to do." For one thing, she points out, most suicidal
thinkers tend to romanticize their deaths by suicide, failing to realize that any gesture
or attempt can result in permanent physical damage. "The fantasy of killing myself
remained strong because it was a habit, an addiction," she wrote. "I spent
hundreds of hours planning my funeral and imagining the remorse of my family and
friends."
Though she concedes that suicidal thoughts may be with her for the rest
of her life, she has persevered, learning how to "outthink suicide" with a wide
variety of techniques. They include developing an understanding of how the nervous system
works, learning to recognize what sets off feelings, knowing how and when to ask for help,
keeping a journal and designing a crisis plan. The crisis plan is "a recipe for
survival intended to "keep you safe when your brain starts flipping out." It
includes telephone numbers of people who have agreed to be part of the plan and a list of,
activities that should be adhered to -- making a gift for someone, taking a walk, playing
word games, blowing soap bubbles and playing with the cat.
Asking someone to listen on call can be difficult and embarrassing, the
author says, but the person's acceptance brings hope and connection. She advises asking:
"Could I put your name on my phone list? I just need you to listen, rather than offer
answers or advice. I just need support." If a potential listener says no, Ms. Blauner
says, "thank him or her for being honest and take several deep breaths."
"You might feel rejected, which stinks," she adds, "but it just means
there's someone more suitable to ask."
D.C. Mental Health Set To Lay Off About 235
David Nakamura, Washington Post- 11/20/2002
The District's Department of Mental Health will lay off as many as 235 employees in
January, in an effort to streamline services and reduce costs at the nascent agency,
officials said yesterday. The reduction in force, which could represent as much as 12
percent of the department's 1,935-member staff, is part of an ongoing plan to overhaul the
way the city serves its mentally ill, said Mental Health Director Martha B. Knisley.
"We're looking to create a sound mental health structure," Knisley said.
"This has been underway for two years. We're going through a wide-ranging, sweeping
review." She said the reductions will take place "across all of our operational
components, management and non-management. We examined all 1,900 jobs and asked, 'Is this
job critical and necessary?' "
Last month, the D.C. Council closed a $323 million deficit by passing
eleventh-hour legislation that raised some taxes and slashed the budgets of major
agencies. Knisley said her department's budget was reduced from $227 million to $217
million, but she stressed that the reduction in force is not directly related to that
budget crunch.
Council member Jim Graham (D-Ward 1), who serves on the council's
Committee on Human Services, said he was not aware of the pending layoffs. He said he is
concerned that the city's budget problems will mean that "this is the type of thing
we can expect more of rather than less."
The city's Department of Mental Health was born 1 1/2 years ago out of a
court settlement intended to end one of the nation's longest-running lawsuits on mental
health care, filed in 1974, that charged the city was doing little more than warehousing
its mentally ill at St. Elizabeths Hospital. A series of monitoring efforts ended with the
court-ordered takeover of the system by a receiver in 1997. In May, Mayor Anthony A.
Williams (D) officially took control of the department and its services for 8,000 city
residents.
As part of the transition from receivership, the department agreed to a
plan that called for a reorganization, splitting its regulatory and oversight functions
from its role as a provider of direct care. "In order to implement the plan, we have
been restructuring continuously since the department was created," Knisley said.
"One of the features of the restructuring is a focus on how we can become more
efficient and streamline operations, so we can serve more people and improve the quality
of care."
Peter J. Nickles, the lead attorney whose class-action suit has
represented thousands of city mental health clients since 1974, said yesterday that he had
received assurances from the District that the layoffs would not adversely affect
services. "If they do, we'll be back in court in a minute," said Nickles, who is
to appear with mental health officials in U.S. District Court today before Judge Norma
Holloway Johnson for a regularly scheduled update on how the department is progressing.
Knisley said the layoffs were announced to the employees this week so
that they would have time to find new jobs in city government or elsewhere. "We
wanted to make sure we got the most information out as quickly as we can so they can plan
for the short term and long term," Knisley said. Knisley noted that the department,
while laying off employees, is still expanding some services, particularly in the child
mental health area and treatment for the effects of terrorism. Much of the expansion is
being funded by federal grants, she said.
Psychotherapy Shows a Rise Over Decade
Erica Goode, New York Times- 11/20/2002
The number of Americans who received psychotherapy increased slightly from 1987 to
1997, according to a large national study, and rose significantly for two groups: older
adults and the unemployed. But the average length of time patients spent in the consulting
room dropped precipitously over the same period, the study found, and the percentage of
patients who combined psychotherapy with psychiatric medication nearly doubled.
The researchers said the findings reflected the impact of managed care
and the growing popularity of brief forms of psychotherapy, as well as the wider use of
antidepressants and other drugs to treat many mental disorders. But the study's results,
they said, also indicated that despite these changes, access to psychotherapy had
increased for some groups, and that talk therapy remained, for many people, an important
component of mental health treatment.
"With all the attention given to antidepressants and other
medications, the role of psychotherapy can be easily overshadowed," said Dr. Mark
Olfson, an associate professor of clinical psychiatry at Columbia University and the lead
author of the study, which appeared in the November issue of The American Journal of
Psychiatry. "But these findings make clear that psychotherapy continues to play an
important role in the mental health care of many Americans." The study, based on data
collected in two national surveys by the federal Agency for Healthcare Research and
Quality, is the largest to examine the patterns of psychotherapy use over time.
Dr. Olfson said talk therapy represented a smaller proportion of all
mental health treatment in 1997 than in 1987. But in absolute numbers, psychotherapy's
popularity remained steady, and even experienced a slight increase. In 1987, 7.85 million
people -- or 3.24 percent of the nation's population -- visited mental health
professionals for psychotherapy, the study found. Ten years later, that number had risen
to 9.69 million or 3.59 percent. The increase was not statistically significant, the
researchers said.
In contrast, the researchers noted large increases in the use of
psychotherapy among people from the ages of 55 to 64, a little over 836,000 or 3.92
percent of whom received psychotherapy in 1997 compared with 455,000 or 2.02 percent in
1987. The number of unemployed adults making visits to mental health professionals also
rose significantly, to close to 3 million or 4.62 percent in 1997 from 2.2 million or 3.33
percent in 1987.
The new study makes it apparent , that although psychotherapy is holding
its ground, few people these days undertake a lengthy sojourn on the couch. The percentage
of patients who saw therapists for more than 20 sessions dropped to 10.26 in 1997 from
15.69 in 1987. Slightly over 33 percent attended only 1 or 2 sessions. The proportion of
psychotherapy patients who also took psychiatric medication, on the other hand, increased
to 61.52 percent in 1997 from 31.52 percent a decade earlier.
Dr. Harold Pincus, the director of the Rand University of Pittsburgh
Health Institute and an author of the study, said the same factors responsible for the
increased use of psychiatric medication, including a greater public awareness of
depression and other psychiatric conditions and the gradual lessening of the stigma
attached to mental illness, might also be drawing more people in these groups to
psychotherapy. "A rising tide raises all boats," Dr. Pincus said.
Depression, manic-depression and other so-called mood disorders were by
far the most common diagnoses given to patients who received psychotherapy in 1997. Almost
39.09 percent of the patients surveyed were listed on insurance forms as suffering from
depression or another mood disorder, compared with 19.51 percent 10 years earlier.
In a study based on the same surveys published last January, Dr. Olfson
and his colleagues found that the number of Americans being treated for depression on an
out-of-hospital basis more than tripled from 1987 to 1997 and the proportion of those in
treatment who were taking anti-depressant drugs doubled.
In the surveys, the participants kept diaries in which they recorded
visits to mental health professionals for psychotherapy or counseling. One weakness of the
study, the researchers and other experts said, was that there was no way to know what type
of psychotherapy the participants received. "I think that really is an important
thing to study," said Dr. Darrel A. Regier, executive director of the American
Psychiatric Association's Institute for Research and Education. A variety of studies have
shown that some types of psychotherapy to be highly effective, Dr. Regier noted, but
"there are a lot more studies on medication than on psychotherapy."
Seattle Housing for Alcoholics OK'd
Phuong Cat Le, Seattle Post-Intelligencer- 11/21/2002
A controversial project to house chronic alcoholics -- but not require them to give up
booze to get a bed -- got a green light after the city's hearing examiner ruled in its
favor yesterday. Opponents last month appealed a decision by the city's Department of
Construction and Land Use to grant the project a master permit. They said the project
would bring public safety, aggressive panhandling and other problems to the Denny Triangle
neighborhood.
The proposed apartment building, at 1811 Eastlake Ave., has been
controversial and unusual because sobriety won't be a rule for the alcoholic tenants who
would live in the 75 studios. The project would tolerate drinking by tenants while
providing them with housing, meals and support services to help coax them into treatment.
"I'm looking forward to getting the project off the ground,"
said Bill Hobson, executive director of the Downtown Emergency Services Center, the
non-profit social-service agency that will build and manage the building. "This takes
the project out of the legal limbo it's been in." The $8.6 million housing project
has funding from the city, county, state and federal governments. Demolition of the
current building is expected to begin early next year, Hobson said.
Meanwhile, disappointed opponents said yesterday they would figure out
their next course of action. "We disagree with her (the hearing examiner's)
decision," said Richard Aramburu, the attorney who represented the Eastlake Downtown
Community Association, which filed the appeal. Formed to oppose it, the group comprises
three businesses located near the proposed project -- Marriott Springhill Suites Hotel,
Northwest Trophy and the Benaroya Co., which owns several mixed-used office towers.
Members of the association worried that the project would drive away business and
residents. "We're not surprised, but we're frustrated," said Robb Anderson,
co-owner of Northwest Trophy. The group appealed the land-use approval, saying the
land-use department didn't give adequate notice about the project and didn't properly
assess the potential problems to the neighborhood, such as public urination, violence and
other criminal behaviors.
In her decision issued yesterday, hearing examiner Meredith Getches
cited other housing projects, such as the Wintonia in Capitol Hill, where homeless chronic
alcoholics have been good neighbors, even when they continue to drink. Although chronic
alcoholics living on the streets can create problems for a neighborhood, Getches noted,
those who are in housing "can be good neighbors and do not have those serious and
harmful impacts on a neighborhood."
The project is based on the "harm-reduction theory," which
seeks to lessen problems such as crime and public health dangers while tolerating certain
addictions. Opponents of the harm-reduction theory, however, say that it enables
alcoholics to drink. Dr. Kathleen Decker, a psychiatrist who testified for opponents
during the hearing, said the lack of abstinence would decrease tenants' interest in
seeking treatment.
If chronic alcoholics don't have housing, the emergency services
center's Hobson said, they'll continue to live their addictions in the city's streets,
parks and alleys. Hobson said tenants would be expected to follow rules of behavior
similar to ones in place at four other housing projects his center runs. "It's not a
silver bullet," he said, "but it's a start."
Smoking Cannabis Linked to Mental Illness
Patricia Reaney, Reuters News Service- 11/22/2002
LONDON - Smoking cannabis increases the odds of suffering from depression and
schizophrenia, doctors said today. The occasional marijuana cigarette may not be harmful,
but people who start using cannabis as teens have a higher risk, and the severity of the
illness is linked to the length of exposure to the drug. ''Very young adolescents who use
cannabis have an increased risk for developing schizoprehenia as adults and the most at
risk are the youngest users,'' said Dr. Louise Arseneault, of Kings College in London.
Doctors do not understand how cannabis increases the risk of
schizophrenia and depression but they suspect it affects the dopamine system in the brain,
which is associated with pleasure. It is thought the drug can trigger the onset or relapse
of schizophrenia in people predisposed to the illness and may also exacerbate the
symptoms.
In a study of 1,037 people born in New Zealand between 1972-73,
Arseneault found that those who began using cannabis as teens were four times more likely
to suffer from psychiatric problems as adults than adolescents who did not use the drug.
''The earlier you start, the more vulnerable you are,'' she said.
Her findings, which are reported in The British Medical Journal, are
supported by two other studies in the magazine that found similar results. Researchers at
the Murdoch Children's Research Institute in Victoria, Australia, found that teenage girls
who frequently used the drug were more likely to suffer from depression and anxiety than
other adolescents. Another study of more than 50,000 Swedish enlisted men showed the use
of cannabis increased the risk of schizophrenia by 30 percent.
Schizophrenia is the most common form of severe mental illness. The
cause of the disorder, which is characterized by unusual behavior, delusions, and
hallucinations is unknown but scientists say it affects chemicals in the brain.
US Drunken Driving Deaths Rise After Holding Steady in '90s
Jack Sullivan, Associated Press- 11/22/2002
WASHINGTON - The number of drunken driving deaths in the United States rose last year
after holding steady during most of the 1990s, Mothers Against Drunk Driving said
yesterday. There were 17,448 drunken driving deaths in 2001, up from 16,572 in 1999, the
last time MADD conducted it's ''Rating the States'' survey. The organization graded the
nation with a C, down from a C-plus in 1999, with California ranking the highest with a
B-plus and Montana flunking. Massachusetts scored a D-minus, tying it with Alaska and
ranking it just slightly above Montana. The grades are based on the number of
alcohol-related crashes in each state, trends in the number of deaths, state laws on the
books and enforcement efforts.
One group, the Governors Highway Safety Association, criticized the MADD
report, saying states should be judged on how they measure up against their own goals
rather than against each other. MADD faulted Massachusetts' political leaders for passing
less than half of the laws recommended by MADD to curb drunk driving. ''We need to do
more,'' said Barbara Harrington, executive director of MADD Massachusetts. ''It is time to
rekindle efforts against drunk driving.''
The group said the first thing Massachusetts should do is pass a law
mandating that any driver with a blood alcohol level above the legal limit be
automatically considered drunk. Currently, state law only allows blood-alcohol levels as
evidence of intoxication, rather than as proof. Juries can find drivers not guilty of
drunken driving even if their blood alcohol level is above the legal limit. Massachusetts
is the only state without the law; it faces the loss of millions of dollars in federal
highway funds if it doesn't adopt the change.
Advocates also criticized lawmakers for failing to pass a bill allowing
police to pull over a driver and issue citations for not wearing a seat belt. Currently,
drivers in Massachusetts can be cited for not using seat belts only if they are pulled
over for another offense. ''When that police officer makes the stop, he or she needs the
tools, as do we in the courts, to produce the evidence that that person has been driving
drunk,'' said Middlesex District Attorney Martha Coakley.
In 2001, 234 people died in car accidents involving alcohol in
Massachusetts, about 49 percent of all motor vehicle fatalities, compared with the
national average of 41 percent. The rate of young drivers who had been drinking and were
involved in fatal accidents in Massachusetts increased between 1998 and 2001, according to
the report. Nationally, alcohol-related traffic deaths dropped by 40 percent from 1980
(when MADD was formed) to 1993. The number of deaths hovered around 16,500 from 1994 to
1999.
''The war on drunk driving stalled,'' MADD president Wendy Hamilton
said. She called Montana ''abysmal,'' noting the number of alcohol-related crashes in the
state, its failure to set 0.08 percent as the legal blood alcohol limit, and a lack of
support for making failure to wear a seat belt a primary traffic violation. It was the
first time any state has received a failing grade. Last year, 104 of Montana's 230 traffic
deaths occurred in alcohol-related crashes, MADD said.
Dave Galt, director of the Montana Department of Transportation, said he
is concerned about that number but said the state is working to lower it. He said he
expects the Legislature will consider lowering the blood alcohol level from 0.1 percent
next year and imposing a statewide ban on open containers of alcohol in vehicles. ''I'm
not proud of being `F,''' Galt said. ''I take that very seriously.'' Galt said he
disagreed with how the report described the state's efforts to fight drunken driving,
pointing to funding of efforts to reduce underage drinking and to set up visible sobriety
checkpoints.
After California, other states that received high marks include Georgia,
New York, North Carolina, and Oregon, which all received B grades. MADD's recommendations
to reduce the number of deaths include more and well-publicized sobriety checkpoints. It
also urged tougher penalties against drivers who refuse alcohol tests when stopped, are
caught driving with license that was suspended for an earlier drunken driving arrest, or
who have a blood alcohol level of 0.15 percent or more.
Battered Women's New Day in Court
Kimberly Edds, Washington Post- 11/22/2002
LOS ANGELES -- Marva Wallace's husband beat her. The young woman was bloodied and
bruised often during her one-year marriage. Then one horrible night her husband slapped
her and forced her to perform a sex act while her 2-year-old daughter watched. Afterward,
Wallace went to the bedroom, got a gun and shot him three times in the back of the head.
She spent the past 17 years in prison for murder, but Wallace, 48 and a grandmother, now
is free. She is the first woman to be released under a new California law that gives
inmates a chance to prove the outcome of their trial could have been different had
evidence of "battered-woman syndrome" been presented.
The 11-month-old law may turn back the clock on hundreds of murder
convictions decided before such evidence was required to be admissible at trial. It will
give abused women one last legal tool to seek a new trial, have the severity of their
offense reduced or even be released with time served, said advocates for battered women.
A few states have enacted laws over the past decade to make it easier
for defendants to pursue a strategy of self-defense using battered-woman syndrome,
including evidence of prior beatings. Since 1992, California has required that evidence of
abuse be permitted in murder trials. But the new law is the first in the nation to allow
inmates convicted in trials before the new requirements to demand another hearing.
Wallace was convicted in 1985, and Los Angeles Superior Court Judge
David S. Wesley freed her last month. It is up to prosecutors to decide whether they want
to retry her; a spokeswoman for the district attorney's office said the case is under
review. At a new trial, a defense expert would testify that Wallace was a victim of
battered-woman syndrome. Some medical experts say a steady cycle of violence leaves women
feeling helpless, so they often stay in abusive relationships and may eventually see
suicide or homicide as the only way out. Advocates are hoping Wallace will not be retried
and will be allowed to remain free -- a sign that the fight to free battered women is
being reinvigorated. "We're definitely hoping that she is granted a release so other
judges won't feel timid or shy about doing something completely new," said Nausheen
Hassan, of the California Women's Law Center.
Skeptics say evidence of battered-woman syndrome was routinely admitted
in court before it was mandated a decade ago. They also say the law seems excessive, given
the other mechanisms in place to ensure the convictions were just. "Our chief concern
was it was unnecessarily disturbing murder convictions which were properly reached by a
jury," said Lawrence Brown, executive director of the California District Attorneys
Association. The association initially opposed the bill, but became neutral after securing
an amendment that prevents inmates who raised the issue under different legal challenge
and lost from trying again. "We were concerned about giving murderers two bites at
the apple," Brown said.
Sue Osthoff, of the National Clearinghouse for the Defense of Battered
Women, said explaining to juries the effects of abuse is critical to showing a woman acted
in self-defense. But critics label the strategy as the "abuse excuse," a blank
check that allows women to kill without being held responsible for their actions.
Advocates argue many women who kill their batterers actually endure a
tougher legal road and stiffer penalties than men who beat their wives to death in the
heat of the moment. Having an expert witness help explain why abused women may feel in
imminent danger even when their partner is not actively attacking them can be a turning
point for the defense, they said. "Most people can understand self-defense if I'm
attacking you, but they don't understand how someone who after years of terror, shoots
them in the back or poisons them, is acting in self-defense," said Kenneth Theisen, a
lawyer with the California Coalition for Battered Women in Prison.
Nearly 600 women are in California prisons for killing their alleged
batterers, but it is unclear how many of those women were convicted prior to 1992.
Advocates said at least 100 women would be entitled to seek relief under the new law. Only
women convicted of first- or second-degree murder are eligible to seek relief under the
new law -- leaving without recourse women who pleaded guilty to manslaughter to avoid a
harsher sentence.
Osthoff called the law a "creative" way of navigating the
complex avenues California inmates must take to seek release, when clemency and parole are
options that have all but been taken from them. Two weeks before Wallace was freed, she
was turned down for parole by Gov. Gray Davis (D). The governor has vowed to let no
murderer go free, rejecting all but two of the 144 cases recommended for parole by the
Board of Prison Terms.
The push to free battered women from prison was stepped up in the early
1990s. Several governors granted clemency to dozens of convicted killers, including
Richard Celeste, then governor of Ohio, who freed 25 women, saying they had not had an
opportunity for a fair trial because testimony about abuse had not been presented. But the
dozens of clemency petitions sent to Pete Wilson, who was then California's governor, went
largely unanswered. Three women out of 34 petitions submitted by battered women were freed
-- for reasons other than their abuse. Initially receiving a swell of public attention,
the campaign has lost momentum. Few women have been freed in recent years.
Advocates say they hope the California law can once again jump-start the
effort across the nation -- and there are some signs of movement. New York, which has not
freed an alleged battered woman since 1996, adopted a law in July that allows victims of
domestic violence serving prison terms for killing or assaulting their abuser to be
eligible for work release.
What Did You Mean by All That, Dr. Freud?
Richard Panek, New York Times- 11/24/2002
Some six decades after his death, a century after the publication of "The
Interpretation of Dreams" and an eternity since we've been able to imagine what
living in a world without Freud might have been like, the question can seem nonsensical.
But over the years Freud's chroniclers have taken such radically opposite approaches,
either idealizing him or demonizing him, that even a scholar of psychoanalysis might
wonder: who was he, really?
There is no "really," Freud might have answered, and then he
probably would have made the point that such interpretations reveal more about the
interpreter than they do about the subject. But he would also have insisted that there
exists at least the possi-bility of trying to understand an individual on his own terms.
In his case, that perspective is available only now that the so-called Freud wars have, if
not ended, at least abated.
"People are ready to look at Freud with clearer eyes than ever
before," said David Grubin, the writer, producer and director of the documentary
"Young Dr. Freud," which has its premiere on PBS on Wednesday. "Freud was a
genius, but he was also wrong about a lot of things. So let's just try to understand why
he did what he did, how he did what he did, and how we've moved on." When Freud died
in 1939, his reputation rested on his mature work and its consequences -- his theoretical
writings on psychical structure in the 1920's and his summations of his life's work in the
1930's, as well as the spread of the psychoanalytic movement. He, was an outsize
historical figure, more of a figurehead, actually: bearded, bearing a cigar, peering over
rimless glasses into some recess of the psyche. Not until the 1950's, beginning with the
publication of Ernest Jones's biography, selections from Freud's correspondence and, for
English readers, the Standard Edition of his writings on psychoanalysis, did the
pre-figurehead Freud become public.
The response was extreme and, in retrospect, predictable. Freud was not
what he seemed. He had manipulated the past in his later reminiscences, embellishing
memories so that he might seem to have been the victim of an intractable medical
establishment in his youth. He had manipulated the future, burning manuscripts and junking
correspondence so that posterity might not have too easy a go at him. Freud was a fraud
But this neglected the same truth that the earlier hagiographers had
failed to take into account: Freud was human. "And why not?" Mr. Grubin said.
"Why shouldn't he be flawed?" As he began planning his documentary, Mr. Grubin
decided he wanted to avoid presenting "one polemicist versus an-other
polemicist." In particular, he wondered whether he would find psychoanalysts who not
only saw Freud's flaws but would also say so on film.
Somewhat to his surprise, he did. As Elisabeth Young-Bruehl, a Manhattan
psychoanalyst and a biographer of Freud's daughter Anna, told Mr. Grubin during a panel
discussion last spring at the Museum of Television and Radio: "If you had made this
film even 15 years ago, you would not have had a group of psychoanalysts who were as
willing to be publicly critical, skeptical -- to have a historical distance from the
founding father. That has changed completely within the world of psychoanalysis."
Freud always expected to be controversial, but for what he wrote, not
who he was. What he didn't anticipate -- and where his public afterlife has turned out to
differ from that of other figureheads -- is how much the revelation of his human flaws
would affect the perception of his entire program. If Freud fudged, if Freud imposed his
interpretations on his patients, if his correspondence with Wilhelm Fliess from the 1890's
reveals that Freud worshiped someone we might today call a quack -- what does that say
about psychoanalysis?
"One hundred years later, Freud's essential insight that we're
driven by forces we aren't aware of, that we're not transparent to ourselves -- we just
accept that," Mr. Grubin said. "Everybody accepts that." What not everybody
accepts is that psychoanalysis is a science. Freud himself always insisted it was. But
during his lifetime psychologists and philosophers argued otherwise, and today
psychoanalysis remains controversial to the extent that its founder departed from
traditional scientific methodology. Without subscribing to either view, Mr. Grubin took
the nonidealizing, nondemonizing perspective now available and tried to apply into the
period before "The Interpretation of Dreams," when Freud was consciously
modeling his work on the scientific method. Hence the focus of the film as well as its
title: "Young Dr. Freud."
He knew this approach would present challenges, Mr. Grubin said, not
just analytic but cinematic. "I'd done Napoleon right before this," he said,
referring to the latest in a series of television documentaries he has made chronicling
the lives of world leaders, including Lincoln, Truman, Lyndon Johnson and both Roosevelts.
"Here's this one guy fighting on these battlefields. Horses. And cannons. And this
other guy whose life is relatively uneventful. What's he doing every day? Seeing his
patients. Having lunch. Seeing his patients. Sitting down to work. Takes his walk along
the Ringstrasse; goes back to work. Day after day after day. Freud had this uneventful
life -- the opposite of Napoleon's life. How do you render the great events of his life,
which were internal?"
Although he relied on reenactments to bring to life the dream images and
memories that Freud described during this period, Mr. Grubin also found himself adopting
"a radically different structure." While considering how to present Freud's
personal story -- all that potentially deadly background blah-blah-blah about childhood
and home and family, always the bane of the documentarian's existence -- Mr. Grubin
realized that the Freudian approach itself offered a solution. Why not introduce the
information about the early years of Freud's life not when a documentary usually would,
near the beginning of the film, but instead when it becomes important, to Freud -- just as
all the influences of Freud's scientific and cultural background coalesce in the late
40's, and psychoanalysis, if not the 20th century, is born?
If this structure works, Mr. Grubin said, it will "seem that that's
the way it should be." Because that's the way psychoanalysis works and, if Freud was
right, that's the way the human mind works as well. "I don't think people really
understand what Freud did and what analysis is," Mr. Grubin said. "If more
people went into analysis because of seeing this, I'd be very pleased." Not, he said
quickly, that he made "Young Dr. Freud" for that reason (at least, not
consciously). "But it's a very human process. That's what people don't quite get.
It's what Socrates said: 'Know thyself:' 'Not so easy': That's what Freud said."
Defending Bruno Bettelheim
A Book Review of "Rising To the Light" by Theron Raines
Emily Nussbaum, New York Times Book Review- 11/24/2002
No one falls harder than a hero, and Bruno Bettelheim fell harder than most. Before his
suicide in 1990, Bettelheim was considered close to a secular saint: a gentle sage who
courageously synthesized what he had learned as a survivor of the Nazi concentration camps
and spearheaded a revolution in child psychology. His belief that bad mothering caused
autism might have been outmoded, but he himself was still widely considered a genius, a
compassionate philosopher of survival.
Yet within weeks of his death, scandal crashed in. Patients at his
Orthogenic School for emotionally disturbed children at the University of Chicago came
forward with claims that far from being gentle, Bettelheim slapped and abused his charges.
His most influential book, "The Uses of Enchantment," a study of the therapeutic
power of fairy tales, was said to be marred by plagiarism. And seven years later, a truly
devastating biography was published: "The Creation of Dr. B," by Richard Pollak,
whose brother had. been a patient of Bettelheim's. The notoriously private psychoanalyst
had refused to be interviewed, but Pollak worked for years tracing his history. His
conclusion was that Bettelheim was not just a bully but an inveterate liar who faked his
academic career, his concentration camp experiences and the evidence for his school's
success.
Given this history, one can sympathize with Theron Raines's obviously
heartfelt desire to reclaim his friend and client's reputation. His is not the first
defense of Bettelheim. Nina Sutton covered much of the same ground in "Bettelheim: A
Life and Legacy," making many of the same psychoanalytically inflected arguments. But
Raines's perspective is more explicitly personal.
Indeed, he is open about his hero worship. For years, Raines, who was
Bettelheim's literary agent, had been taping interviews with him, aiming to put them
together either as transcripts or as a sort of collaborative autobiography. Such
interviews took place up until three days before Bettelheim's suicide-- a source of much
anguish for Raines, who was devastated at the thought that he might have saved his friend.
This intimate source material could have made "Rising to the
Light" uniquely illuminating, a book that offered, in effect, Bettelheim's response
to his critics from beyond the grave. But no matter how many interviews Raines conducted,
Bettelheim withheld meaningful details -- alternately talking about his life in the
abstract, distanced manner in which he wrote about it, and delivering canned (and
sometimes questionable) anecdotes familiar from earlier biographies. In all their
conversations, Raines notes, Bettelheim revealed "not a single vivid anecdote about
life at the Orthogenic School." He was also unwilling to discuss his first marriage,
his relationships with his children or his months at Dachau and Buchenwald.
Raines interprets this opacity with radical charity, insisting that
Bettelheim is protecting his privacy, refusing to revisit a painful experience or modestly
avoiding bragging. A less charitable interpretation might be that Bettelheim kept his
stories vague in order not to trip himself up or, more generously, that Raines was simply
unwilling to press an elderly, depressed man on the hard questions. Whatever the
explanation, the end result is that the book suffers from many of the same flaws as
Sutton's 1998 biography: Raines is so determined to rehabilitate Bettelheim's legacy that
he fills in the gaps with his own sympathetic readings, then accuses people who disagree
of projection, sour grapes or both.
Most strikingly, Raines fails to confront in any meaningful way Pollak's
findings. Rather, he relegates these issues to the footnotes and appendixes, particularly
the odd Appendix D, titled "Eidetic Memory and False Memory (and Autism)," in
which he explains that a certain amount of image embellishment "no doubt happens
within all of us." But the stories Bettelheim is accused of faking go beyond simple
self-dramatization. He claimed, for example, that he met Freud; that Eleanor Roosevelt
helped with his release from Buchenwald; that he participated in the Jewish resistance;
that he raised two (or sometimes "several") autistic children with his first
wife. When Raines does provide Bettelheim's version of one of these tales (for instance,
Bettelheim's memories of a young American girl he and his wife took in), there is sparse
comment on other stories Bettelheim provided on the subject.
Raines also uses Appendix D to dismiss Pollak's other major assertion:
that Bettelheim exaggerated the successes of the Orthogenic School. We should take it on
faith, Raines says, that the doctor cared more about the children than statistics, and
thus had good reason to object to follow-up studies: to do so would violate "the
understanding -- the covenant -- the school had with the children. Given the questions
about Bettelheim's truth-telling, this is an unpersuasive argument.
Raines does, however, deal fully with Bettelheim's habit of hitting
students. Indeed, he returns to the subject again and again. The Sonia Shankman Orthogenic
School was (as even critics acknowledge) in many ways the revolutionary place Bettelheim
portrayed in his writing: a homey environment in which severely disturbed children were
treated with patient love. But while counselors were forbidden to hit their charges,
Bettelheim habitually slapped students. He humiliated his young, inexperienced staff
members, a method one staff member memorably termed "the Nazi-Socratic method."
Worshiped and feared, he was the very model of a charismatic, intimidating autocrat.
Raines's response to this is tautological: Bettelheim was a genius, so
if he hit children, he must have had good reason. Bettelheim was the school's
"super-ego," Raines says, its master, its symbolic father. (Rather confusingly,
he also says that Bettelheim hit children precisely so they wouldn't see him as a father.)
Only a physical attack could break through the children's "false dignity" and
help them to rebuild their damaged personalities.
Raines's faith in Bettelheimn is so extensive that he appears at times
to regard the doctor as godlike: "The iron in Bettelheim's spirit gave weight to his
hand in raising barriers of fear, and his insight into a child's motives told him the
moment to do what he did." Why, then, did Bettelheim not mention slapping in his
several written accounts of the Orthogenic School -- speaking out many times against
physical discipline, calling it at, one point "a brutal and illogical method"?
Again, Raines finds a selfless explanation: "Rather than courting misjudgment on all
sides, he chose to act for the children and leave the world in the dark."
Raines takes a similarly defensive tack on other controversial subjects,
like Bettelheim's mother-bashing and his theories of Jewish passivity in the face of the
Holocaust. For Bettelheim scholars, there is some fresh information here, as when
Bettelheim discusses in detail his early years with a wet nurse, as well as his early
intellectual influences. But almost all of the basic material is familiar from either
Bettelheim's own writing or earlier biographies. Indeed, Pollak himself used an earlier
version of Raines's manuscript, although he presented the material more critically.
Several resources were simply not available to the author: when he interviewed,
Bettelheim's first wife, Gina, she spoke to him for 30 minutes, told him he was "too
close" to his subject, and ended the interview.
Strangely, despite its darker portrait, one may in the end develop a
more sympathetic sense of Bettelheim's life from Pollak's biography, which often
acknowledged opposing perspectives, including those of children who felt they benefited
from his care. For while Raines clearly loved and admired Bettelheim, his insistence on
the Bettelheim's genius is so hyperbolic it eventually grows unconvincing. Bettelheim's
"mental stance ... reminds me of classical Greek sculpture, where gods and mythic
heroes stand before us naked and natural," Raines writes, and even Bettelheim's
suicide is judged "an act typical of him in its clarity, courage and
rationality."
If this worshipful portrait does not repair Bettelheim's damaged
reputation, Bettelheim is at least not alone. Alfred Kinsey; Dr. John Money (the subject
of John Colapinto's "As Nature Made Him: The Boy Who Was Raised as a Girl");
Carl Jung and Freud himself -- each of these heroes of psychoanalysis and psychology has
been tilted off his pedestal in recent years. But if these debunkings may feel at times
like little murders; they are also perhaps necessary correctives, reminders that even the
most charismatic intelligence is no guard against human weakness.
Mentally Ill Children Unable to Get into Treatment Centers
Associated Press, 11/24/2002
HARTFORD, Conn. -- Children diagnosed with serious psychiatric problems face a shortage
of state beds, and often are housed in emergency rooms while waiting for space at an
appropriate facility, The Hartford Courant reported Sunday. The problem has grown worse in
the past two years, and children are waiting longer for admission to psychiatric care
centers, the newspaper reported. Last month, Connecticut Children's Medical Center's
emergency room doctors held children awaiting psychiatric beds for 60 days. In October
2001, children were held in the emergency room for 18 days. In 2000, the total was only
five days.
''It's just out of control,'' said Dr. Lynelle Thomas, director of
Yale-New Haven Hospital's emergency child psychiatric service. The hospital has seen the
number of patients receiving psychiatric assessments jump from 500 in 200 to 720 in 2001.
''We're admitting kids from the psychiatric unit to our pediatric medical unit,'' she
said. ''It's completely inappropriate, but we're in a crisis.''
During the past two years, there has been a constant waiting list at the
98-bed Riverview Hospital in Middletown., the state's only youth psychiatric hospital.
Children who are ready to leave that facility often cannot because there are not enough
sub-acute programs for them to move into, the newspaper reported. ''This is not a new
problem. This is a recurring problem,'' said state Child Advocate Jeanne Milstein.
The Department of Children and Families had one program, St. Francis
Care Behavioral Health in Portland, where children could go post-hospitalization. But the
agency ended its contract two months ago after a dispute about how the facility treated
patients. The decision eliminated 75 beds for sick youths.
''There's not enough beds in the community, so where else are they going
to go? To America's safety net: the local emergency department,'' said Dr. Peter Jacoby,
chairman of the emergency department at St. Mary's Hospital in Waterbury. ''They can
always come through our door and we have to stabilize them and make sure they're safe.''
DCF has tried to address the problem through a program called
Connecticut Community KidCare. In its first year of operation, mobile crisis teams
dispatched by the program have helped divert more than 120 children from the emergency
room at Connecticut Children's Medical Center during the past year, to private beds. The
program hopes to create an additional 200 mental-health beds statewide by hiring private
providers. DCF spokesman Gary Kleeblatt said the initiative will take time to develop, but
said the department is making ''substantial progress'' on the problem. ''KidCare in all
its components will take two to four years of implementation to see the full impact,''
Kleeblatt said. |