Noteworthy News Articles on Mental Health Topics, February
13-16, 2005
Schools Responding to Increasing Abuse of Hyperactivity Drug
Associated Press, 2/13/2005
BRIDGEPORT, Conn. -- Staying up all night to cram for an exam is
nothing new on college campuses, but the new drug of choice many students
are using for that extra boost is. Adderall, a powerful and potentially
addictive drug used to treat attention-deficit hyperactivity disorder,
is increasingly finding its way onto campus and, in some cases, to
high schools. The illegal use of the prescription drug is a problem
educators say has grown more rampant over the past 10 years.
At Fairfield University, health services
officials are using creative methods to get the word out about misuse
of Adderall and other prescription drugs. The campaign includes posting
warnings in classrooms, bathrooms and hallways, said Dr. Susan Birge,
assistant vice president of student resources. Birge said Adderall
problems may not compare with depression or binge drinking but are
on the radar of the university's counseling team.
The Canadian government recently suspended
sales of the latest version of Adderall, which has been linked to
20 sudden deaths, 14 of them children. A dozen strokes, two in children,
were also reported in users taking the recommended doses. All the
deaths, which date back to 1999, occurred in the United States.
At Sacred Heart University, counselor
Richard Madwid said one of his concerns is the possibility of students
mixing the drug with alcohol and suffering an adverse reaction. "I
have seen the level of abuse increase in the past 10 years,"
Madwid said. "It is comparable to all the other substances that
are misused."
Consisting of a mix of amphetamines,
Adderall is known to correct chemical imbalances in the brain. A 2002
study by the University of Wisconsin reported that one out of every
five college students takes the drug, many illegally. In Milford last
year, a student at Jonathan Law High School was caught with the drug
without having a prescription. The city's Health Department has enforced
stringent guidelines that closely regulate how such medicines can
be dispensed on school property, said School Nurse Administrator Joan
Cagginello. Signatures from a parent and physician are needed on a
special form before children can bring a prescribed substance to school
with them. The drug is then placed in a locked area in the school
nurse's office. "All of the nurses have medical cabinets. It
is double locked," Cagginello said.
Filming of Bridge Suicides Raises Stir
Bobby Caina Calvan, Boston Globe- 2/13/2005
SAN FRANCISCO -- From dawn to dusk for a year, two video cameras
caught the routine atop the deck of the world's most famous bridge
-- fog sweeping across the Golden Gate, cars passing, tourists taking
in vistas of San Francisco Bay. But with alarming regularity, the
cameras also captured a more disturbing reality: the final anguished
moments of troubled souls hurling themselves over the edge. The footage,
recorded over the course of a year by a filmmaker, showed more than
two dozen suicides -- generating controversy about the ethics and
morality of the film project and reigniting the push for a barrier
to thwart bridge jumpers. It is not known whether the filmmaker, Eric
Steel, will use any of the actual suicide footage in the film, but
he has said suicide will be addressed.
Since the iconic span opened in 1937,
the beauty and grandeur of the Golden Gate Bridge have been both blessing
and curse, attracting millions of visitors who help sustain a vital
tourist industry, but also luring dozens of despondent people each
year. ''The bridge has a real mystique to it. This is where the earth
seems to drop off. In a symbolic sense, this is the last stop. It's
in a beautiful place, and it's a dramatic place to end one's life,"
said Dr. Mel Blaustein, president of the Psychiatric Foundation of
Northern California, who has long been an advocate for a suicide prevention
barrier at the bridge.
At least 1,300 people have leaped to
their deaths from the bridge, a statistic unmatched by any other structure,
including the Eiffel Tower and the Empire State Building, both of
which dramatically reduced deaths by installing suicide barriers decades
ago. The first known suicide at the bridge occurred three months after
the span opened. On average, someone jumps off the Golden Gate every
two weeks, although some say the rate could be much higher because
many suicides go unseen, perhaps committed at night, and the bodies
of some victims never wash ashore. Blaustein likened the span to a
loaded gun, a convenient tool for those unable to overcome the impulse
to die. ''The railings are only 4 feet high. It's fast -- it only
takes a four-second fall to the water -- and it's clean," he
said.
In recent weeks the Golden Gate Bridge,
Highway, and Transportation District, which manages the bridge, has
been under pressure to address the matter. ''It's become a real hot
issue," said Mary Currie, spokeswoman for the district. ''I don't
think the Eiffel Tower or the Empire State Building are any less beautiful
now that they have suicide barriers," Blaustein said.
Steel -- whose feature-film credits
include ''Shaft," ''Angela's Ashes," and ''Bringing Out
the Dead" -- said he would use footage from his yearlong filming
at the bridge for a feature-length documentary.
The bridge district will revisit the
subject of a suicide barrier later this month, although a specific
proposal will not be under consideration. Six years ago, the district's
19-member board rejected an 11-foot fence that used technology developed
to control cows, deeming the design ineffective and inappropriate.
Over the years, a variety of ideas have been proposed, including nets,
transparent walls, and high-voltage laser beams designed to stun would-be
jumpers.
Even if bridge officials again decide
to explore a suicide barrier, it would be the beginning of potentially
a years-long process. ''It's not as simple as throwing up a fence,"
said Maureen Middlebrook, president of the district board. ''In anything
we do with the bridge, there are huge things we have to take into
consideration. It's not merely about the aesthetics." Besides
preserving the grandeur of the Art Deco structure, there are safety
and engineering concerns. A barrier would add to the span's load,
and any design must account for the high winds that buffet the canyon-like
inlet the bridge straddles. Unlike the less heralded Bay Bridge nearby,
where few suicides occur, the Golden Gate is accessible by sidewalks
and bike paths.
Authorities once tallied bridge suicides,
but halted the practice in 1995 as the number approached 1,000. The
current figure of 1,300 suicides is an estimate, based mainly on coroners'
records. ''People are still dying and will continue to die,"
said Eve Meyer, executive director of San Francisco Suicide Prevention,
which operates a suicide hot line.
To deter suicides, authorities increased
patrols, provided crisis training to bridge workers, and linked traffic
call boxes to the hot line. ''We have a button on our phone"
for a line dedicated to calls from the bridge, ''and it has not rung,
not since the first month it opened in '94," Meyer said. ''We
need something, anything, to make it more difficult for people"
to jump."
Suicide is most frequently an impulsive
act committed in moments of desperation, which mental health specialists
say usually pass. A 1978 study by Professor Richard H. Seiden of the
University of California at Berkeley tracked 515 people who had been
restrained from jumping off the bridge, from its opening in 1937 to
1971. He found that 94 percent were still alive or had died from natural
causes.
Bridge suicides have always been a
thorny issue for bridge authorities, who do not want to seem indifferent.
They expressed dismay over the latest film project. They said they
were unaware that Steel would be focusing his work on suicides until
he sent an e-mail last month seeking their participation. Steel declined
to be interviewed, but in his e-mail to the district, he said his
film would ''challenge us to think and talk about suicide in profoundly
different ways." ''In my mind, the barrier is either a curious
footnote or a clever issue, a way to get at the deeper themes with
which I am more concerned," Steel wrote. San Francisco Supervisor
Tom Ammiano, a member of the bridge district, has called the film
project ''creepy."
Steel actually set up his cameras within
the Golden Gate National Recreation Area, which is managed by the
National Park Service. He told park officials he was doing the first
in a series of films on America's monuments, including the Statue
of Liberty and the Gateway Arch in St. Louis, park spokesman Rich
Weideman said. But any distaste that the park service might feel about
Steel's use of the footage is trumped by the filmmaker's First Amendment
rights, said Weideman, noting that Steel complied with all rules.
Still, Weideman said, ''It would have been nice to know how he planned
on using it."
Last month, ''The Joy of Life,"
which explores the Golden Gate's dubious reputation, debuted at the
Sundance Film Festival. Its maker, Jenni Olson, contends that a suicide
barrier would have prevented a friend from jumping off the bridge
a decade ago. ''It is time to erect a barrier," Olson said in
an interview. ''It's a spectacular view, but of tragic consequence."
Colleges Offer Classes on Relationships
Martha Irvine, Associated Press- 2/13/2005
MUNCIE, Ind. - Over the last 30 years, academics have been developing
the study of "close relationships," as they call it, forming
the International Association for Relationship Research to share resources
and data. In recent years, though, some professors have moved beyond
theory, making the discussion more personal to students by teaching
relationship skills they can use outside the classroom.
Some call it Relationships 101 - a
concept that has proven wildly popular on campuses across the country.
Such research is "not just about what makes people happy but
how relationships can affect other things -- for instance, someone's
health," says Lisa Baker, an assistant professor of psychology
at Purchase College, part of the State University of New York.
When Scott Hall wants to spark a discussion,
he asks his students something bound to provoke a reaction: Do women
want more out of marriage than men? The students in Hall's course
on marriage at Ball State University -- many of them women -- laugh
and nod at his question. Most of them agree with research he cites
stating that men are most interested in a partner who's attractive
and good in bed. But not Mike Toscano, a 21-year-old senior: "It's
not 'Oh she looks cute and she cooked a pot pie,'" he says. "I
want to be held once in a while, too, y'all." The comment draws
more laughter, as Toscano blushes and smiles. "I'm glad he feels
that way," Anitra Montgomery, a 22-year-old junior, responds
to the class. "But he is rare!" Toscano says he and his
girlfriend, Bethany Ringrose, decided to take the class together this
term to see if they want to take their relationship to the next level.
"It helps me understand my actions and his, too," says Ringrose,
a 20-year-old junior at the school in central Indiana.
With divorce as common as it is in
this country, experts say young couples are wise to do their marriage
homework. "The thinking is, the earlier people learn those skills,
the better off they'll be," says Dennis Lowe, psychology professor
at Pepperdine University in Malibu, Calif., who team teaches a freshman
seminar called "Developing Healthy Relationships" with his
wife, Emily Scott-Lowe.
Among other things, students in the
Lowes' classes practice listening -- namely giving the other person
a chance to speak his or her mind without interruption. And if students
are considering long-term, committed relationships, they're asked
to consider questions such as whose job it would be to buy a car,
discipline a child or cook dinner.
Leslie Parrott, a professor at Seattle
Pacific University, says surveys at her university and others regularly
show that relationships are a priority for students. "They're
often more focussed on relationship quality than their careers,"
says Parrott, a marriage and family therapist who teaches relationships
courses with her husband, Les Parrott.
Lecture topics include "Falling
in Love Without Losing Your Mind" and "How to Break Up Without
Falling Apart." The latter class includes discussion on how to
end a relationship cleanly and taking time after a breakup to avoid
a rebound relationship: Parrott says that session regularly draws
students who aren't even enrolled in the class. "Breaking up
is a real rite of passage for people their age -- they're just dying
and they have no real guidance," says Parrott, who's co-authored
a textbook on relationships with her husband.
Parrott says that some academics question
whether classes like these belong in a college setting. But others
-- from economists to theologians -- say there's no reason love should
be ignored. "The longer I live, the more I realize that the hardest
thing is just relationships," says Robert Brancatelli, an assistant
professor of religious studies at Santa Clara University in California's
Silicon Valley. "It's hard enough to figure out yourself, let
alone another person." His course, "The Theology of Marriage,"
challenges students to go beyond notions of romantic fantasy to ultimately
view love as "a mature self, capable of offering oneself to another
person freely." "And in doing so, you become more of your
true self," says Brancatelli, who requires students to spend
time with married couples to see what a life of commitment is really
all about. "I tell them to try to get invited over for dinner,"
Brancatelli says, "to see what the couples are like after a couple
glasses of wine."
On the Net: International Association
for Relationship Research: www.iarr.org/
Study: Binge Drinking Highest in Midwest
Associated Press, 2/14/2005
WASHINGTON -- Utah, Oregon and states in the deep South have the
lowest rates of binge drinking in the country, while states in the
Midwest and Great Plains have some of the highest rates, says a government
study released Monday. The problem was most prevalent in North Dakota,
where an estimated 31 percent of residents 12 and older had engaged
in binge drinking, according to the 2003 National Survey on Drug Use
and Health. Binge use was defined as consuming five or more drinks
on the same occasion at least once in the last 30 days. North Dakota's
rate was nearly double the 16 percent rate for Utah, which had the
lowest binge drinking rate in the nation, the survey found. Utah has
a large Mormon population, and members of The Church of Jesus Christ
of Latter-day Saints are forbidden to drink. The survey builds on
national data released last September which found that nearly 23 percent
of all U.S. residents had gone on drinking binges.
Utah also had the lowest rate of illegal
drug use among residents 12 and older: About 6 percent had used illicit
drugs in the past month. That was half the 12 percent rate in Alaska,
which was the highest in the country. The national average was just
over 8 percent. ``While we as a nation are making overall progress
in reducing illicit drug use among youth, it is clear from the findings
that illicit drug, alcohol and tobacco use vary substantially among
states and regions,'' said Charles Curie, head of the Substance Abuse
and Mental Health Services Administration.
Many Southern states had rates under
20 percent for binge drinking, while the rate in Oregon was 20.5 percent.
Oregon, though, ranked among the top states for prevalence of marijuana
use: Nearly 9 percent of residents age 12 and older had used marijuana
in the last month. Oregon and other states that showed high marijuana
use in the survey, including Colorado, Montana, Maine and Vermont,
have laws that allow people to grow, smoke or obtain marijuana for
medical needs with a doctor's recommendation. The state with the highest
rate, New Hampshire at 10 percent, does not have such a law. Marijuana
use was lowest in Utah at 4 percent.
National results released in September
found that fewer American youths were using marijuana, LSD and Ecstasy,
but more were abusing prescription drugs. The survey also found that
youths and young adults were more aware of the risks of using pot.
On the Net: 2003 National Survey on
Drug Use and Health: http://oas.samhsa.gov/
Students, Parents Often Kept in Dark About Young Sex Offenders
Claudia Rowe, Seattle Post-Intelligencer- 2/14/2005
There are about 1,800 juvenile sex offenders attending school in
Washington, but most students would never know that the boy or girl
sitting next to them in math class may have served time for molesting
a child. While higher-risk teens must register with law enforcement
upon release from a state institution, local police -- who are required
to notify neighbors -- do not always inform educators. And those principals
who do know of sexually criminal pasts within their student population
generally say nothing to parents.
Debra DeJohn of Shoreline learned this
inadvertently when a co-worker living near a group home for young
sex offenders received a flier explaining that a resident 19-year-old
female, incarcerated at age 17 as a Level II sex offender, was now
a special education student at Shorecrest High School. DeJohn, whose
daughter plans to attend Shorecrest next year, was stunned. She and
other parents had been kept completely in the dark. "I want to
know why the parents of all the children she's going to school with
are not informed that she's there," DeJohn said. "If the
neighbors need to know ... I want to know."
Agreeing that this lack of parental
notification is a potential hazard, two lawmakers in Olympia have
introduced legislation mandating wider warnings. Under bills proposed
by Rep. John Lovick, D-Mill Creek, and Rep. Kirk Pearson, R-Monroe,
law enforcement would be required to report young Level II or III
offenders -- those deemed the highest risk -- to school officials
and to make the same information available to parents upon request.
"It's basically to protect the community," Lovick said.
"It's a fairness issue. Students have a right to know who they're
sitting next to and who they're going to be riding home with on the
bus."
Pearson, who introduced a similar bill
three years ago, has been criticized by some who believe such a law
would unfairly stigmatize young people. He insisted, however, that
it was not meant to harass youths, merely to increase public safety.
"If a sex offender moves into your neighborhood, local law enforcement
officials are required to notify you," he said. "However,
no method exists to know whether your children are in the same classroom
with a registered sex offender. This legislation would provide another
tool for parents to keep their children safe."
Jury Rejects Zoloft Defense
Associated Press, 2/15/2005
CHARLESTON, S.C. -- A 15-year-old boy who claims the antidepressant
Zoloft drove him to kill his grandparents was found guilty of murder.
The trial has been billed as the first case involving a youngster
who says an antidepressant caused him to kill. The trial also comes
at a time of heightened scrutiny over the use of antidepressants among
children.
Defense attorneys urged the jury Monday
to send a message to the nation by blaming Zoloft for the killings
by 15-year-old Christopher Pittman. They said the negative effects
of Zoloft are more pronounced in youngsters, and the drug affected
Pittman so he did not know right from wrong. ``We do not convict children
for murder when they have been ambushed by chemicals that destroy
their ability to reason,'' attorney Paul Waldner said.
But prosecutors called the Zoloft defense
a smokescreen, saying the then-12-year-old Pittman knew exactly what
he was doing three years ago when he shot his grandparents, torched
their house and then drove off in their car. Prosecutor Barney Giese
said the real motivation for the crime was the boy's anger at his
grandparents for disciplining him for choking a younger student on
a school bus. And he reminded jurors how the boy carried out the killings
-- shooting his grandfather in the mouth and his grandmother in her
head while both lay sleeping. ``That anger ... came bubbling up --
came bubbling up like gas out of an oil pit,'' the prosecutor said.
``I don't care how old he is. That is as malicious a killing -- a
murder -- as you are ever going to find.''
Prosecutors also pointed to Pittman's
statement to police in which he said his grandparents ``deserved it.''
``They did not deserve those pellets in their brains,'' Giese said
as he turned toward the defendant. ``No, Chris Pittman, they did not
deserve it. They deserved better.'' The jury deliberated for about
four hours Monday before going home for the day.
Pittman has not denied carrying out
the slayings. He is charged as an adult in the November 2001 murders
of Joe Pittman, 66, and his wife Joy, 62. If convicted, he could get
30 years to life in prison.
Zoloft is the most widely prescribed
antidepressant in the United States with 32.7 million prescriptions
written in 2003. Last October, the Food and Drug Administration ordered
Zoloft and other antidepressants to carry ``black box'' warnings --
the government's strongest warning short of a ban -- about an increased
risk of suicidal behavior in children. Pittman threatened to kill
himself about a month before the slayings. He also ran away from home.
A Zealous Prosecutor of Drug Criminals Becomes One Himself
Ralph Blumenthal, New York Times- 2/15/2005
TAMPA, Tex.-- No one prosecuted the war on drugs in the Texas Panhandle
more zealously than Richard James Roach. As the blustery and hot-tempered
Republican district attorney for five counties overrun with methamphetamines,
he had eked out an election victory in 2000 vowing a crackdown and
was soon gleefully reeling off the harsh sentences he had wrung from
juries: 36 years, 38 years, 40 years, 60 years, 75 years - even 99
years. "I think it's quite clear that the good citizens of this
district are fed up with drugs," he said.
He had barely missed riding the issue
to victory in an earlier race. "My campaign is centered around
doing something with the dope dealers," he told a local newspaper
in 1996, complaining that "it's kind of hard to fight drugs when
you've got dirty law enforcement." But of all the quarry brought
down by drugs in the district's 4,600 square miles of achingly flat
oil fields and cattle rangeland northeast of Amarillo, the biggest
by far was the stunned figure clapped into handcuffs by F.B.I. agents
in the Gray County courthouse here one morning last month: the $101,000-a-year
prosecutor himself, Rick Roach.
Even as he was hounding drug offenders
into jail, it turned out, Mr. Roach was sinking into his own hell
of drug addiction, by his own account stealing methamphetamine and
other drugs from police seizures to cope with depression and sexual
impotence. Equally astonishing was that his taste for drugs was hardly
a secret: it had come to light in two election campaigns.
In a chain of events that Mr. Roach
said in an interview "makes absolutely no sense," he injected
himself with methamphetamine in the presence of his office secretary,
who was secretly working with the Federal Bureau of Investigation
and Drug Enforcement Administration and who, he has since learned,
was wired with a hidden recorder. "I just sort of, you might
say, went nuts; I made irrational and wrong decisions," he said
in several hours of often rambling narrative, part confessional, part
defensive, after a reporter knocked on his door with a question on
almost everyone's lips in the Panhandle: what could explain his astonishing
downfall? "There's no excuse," he said. "I've gotten
what I deserve." He was ill, he said; drug addiction was an illness,
"but there's no defense for taking an illegal substance to treat
mental illness." "Who in their right mind would inject themselves
in front of an employee?" he said. Asked if he was looking to
be caught, he replied, "There's some truth to that."
Government officials said they had
also been investigating him for pornography and weapons possession
-- two guns were in his briefcase when he was arrested on Jan. 11,
and 35 others were found in his home and office, along with stashes
of drugs. Officials also were looking into his handling of millions
of dollars in cash confiscated from drug traffickers along the Interstate
40 corridor that skirts the sparsely populated counties of Gray, Wheeler,
Roberts, Hemphill and Lipscomb, where only 33,500 people live, fewer
than 8 per square mile.
A Guilty Plea
Last Tuesday, in a deal with the United States attorney's office,
Mr. Roach pleaded guilty to possessing a firearm while using illegal
drugs, a charge that could send him to prison for up to 10 years and
carry a fine of $250,000 when he is sentenced in coming months. Three
other drug charges were dropped. He also resigned the office to which
he had just been elected to a second four-year term.
Some said that given Mr. Roach's turbulent
history -- hardly a secret from the voters, who seemed perversely
forgiving -- they were less than shocked. "He's a damned outlaw,
he's always been an outlaw; the rules were made for him," said
John Mann, a Pampa lawyer and district attorney from 1993 through
2000 who feuded with Mr. Roach, his political archrival and eventual
successor. Now Mr. Roach, 55, is under house arrest, confined to his
mother's and stepfather's home in Canyon, an electronic monitoring
bracelet signaling the authorities if he strays more than 200 feet
beyond the door. "If I'm ever a prosecutor again, which will
never happen," he said, "I would be much less Rambo-ish
and more compassionate in the way I handle an offense, particularly
for users." Although some defense lawyers and drug defendants
he prosecuted have voiced outrage, officials said it was unlikely
that any of Mr. Roach's cases would be overturned merely on the basis
of his conviction, without specific evidence of prosecutorial misconduct.
A Rough Road
Mr. Roach's road to the district attorney's office was hardly smooth.
He came from nearby Plainview, where his father, Lavern, was a rising
star in the boxing world, voted rookie of the year in 1947. On Feb.
22, 1950, his 24th birthday, Lavern Roach was felled in the 10th round
of a fight with Georgie Small at St. Nicholas Arena in Manhattan and
died in the hospital the next day. "He had been scheduled to
fight Sugar Ray Robinson the next month," said Mr. Roach, fiddling
with his father's prize gold ring. His mother remarried, and the family
moved to Pampa, the Gray County seat, where Rick went to school and
entered the Army, serving in Korea. At Texas Tech University in Lubbock,
he studied accounting and earned a law degree.
But he was plagued for years by alcoholism
and drug addiction, at times openly, his estranged wife, Cindy, said
in a separate interview at the Yellow Rose, a restaurant they once
frequented. She said that made it particularly astonishing that he
would ever have sought, and been elected to, a top law-enforcement
position. While Mr. Roach was district attorney, his wife said she
repeatedly found narcotics and drug paraphernalia in their barn and
threw them away. Last year she found a tin of drug crystals in one
of his coat pockets, she said. "I was furious," she said.
"He had promised me." She said she dumped the crystals in
the toilet and then confronted her husband. "He said he didn't
know what I was talking about," she recounted.
But around the turn of the year, Mrs.
Roach said, her husband had come to her distraught. "He thought
he had almost overdosed," she recalled. "He had shot something
in his arm. He was scared, crying. He never cried. He wanted to come
home. He had thrown everything away. If he couldn't come home, he
was going to die." Janet Stone, a bartender at the Pampa Country
Club, recalled that on Dec. 30, Mr. Roach was found lying on the floor
in the card room, pale and shaking. He later insisted, she said, that
someone had spiked his wine. Mr. Roach disputed the account but said
he had indeed come to a decision: "No more illegal substances."
On Jan. 3, he showed up at work determined, he said, to apologize
to the staff, and "say, 'Sorry, I've been out of it,' and turn
over a new leaf." But that was the day, the F.B.I. said, he injected
himself with methamphetamine in front of an employee one more time.
Mr. Roach identified her as his secretary, Rebecca Bailey, and remembered
having an uneasy feeling. "I told Becky I felt like something
bad was about to happen; I know something's not right," he said.
"No," he said she had responded, "everything's fine."
Mr. Roach's first recorded brush with
the law, according to a Lubbock police record, was in 1975, when he
was arrested on charges of drunken driving and using abusive racial
language. The charges were later dismissed. He was working in the
town of Canadian when he and Cindy met, and they married in 1980.
Their relationship was stormy from the outset, she said. "He
drank a lot" and sometimes smoked marijuana, she said. She left
him in 1987, filing for divorce, only to withdraw the papers because,
she said, by then they had three boys, including twins.
Descent Into Drugs
In 1988, while they were living in Breckenridge, between Fort Worth
and Abilene, he showed signs of drug use, Mrs. Roach said. Once, she
said, he drove to Plainview and begged a relative to fly him to Lubbock
"because he thought an ambulance was chasing him." He finally
checked himself into a treatment center, she said.
Mr. Roach said he had suffered from
depression since he was 13 and underwent treatments with a medicine
chest of drugs, some self-prescribed and, recently, ordered over the
Internet. "They were all debilitating on my libido, which created
problems with my wife," he said. Viagra, he said, left him with
a splitting headache. He said that in Breckenridge he had started
injecting methamphetamine, finding eventually that, mixed with the
sexual enhancer Levitra, it had the desired effect. "I was going
to patent it," he said with a hollow laugh. "I'm definitely
a mixed-up person."
He said the pornographic images
reported on his office computer had popped up unbidden, and that once
he replied to be taken off the list to receive them, the solicitations
multiplied. He said he had not stolen seized drug money or maintained
an arsenal, describing the weapons as heirlooms and collectors' pieces.
Mr. Roach's first campaign for district
attorney came in 1996. At the time he was the Roberts County attorney,
prosecuting misdemeanor cases at $500 a month. His opponent, Mr. Mann,
won the race by 500 votes and according to Mrs. Roach, the loss plunged
her husband into depression.
It was a hard fought race, with a zesty local weekly, The Canadian
Record, printing reports of Mr. Roach's drug abuse and legal problems.
Four years later Mr. Roach beat Mr.
Mann by 6 votes in a Republican primary marred by charges of fraud,
and then beat him again - by 21 votes - after a court ordered a new
election. He went on to win the general election. Mr. Mann said the
voters were chiefly swayed by Mr. Roach's highly popular family, particularly
his stepfather, Weldon Trice, a beloved high school football coach.
Mrs. Roach said their lives slid badly
downhill in late 2003. She found glass smoking or snorting implements,
foil packets with a burn hole, and white powder and a razor blade
in their barn and spied on her husband sniffing something. Mr. Roach
said of his downfall, "It just presented itself." He said
that in July 2004 he had come across a glass pipe that Texas troopers
had overlooked in searching a seized car. "A girl called it a
crack pipe, so I assumed there was crack in it," he said. He
took it home. "I happened to be having a bad day, so I smoked
it in the barn," he said. Soon after, he said, he found another
stash of overlooked drugs. "I just remember how ecstatic I was
when I found it," he recalled. He used that, too.
On Dec. 16, the F.B.I. said in affidavits
for search warrants, one of Mr. Roach's employees found a syringe
floating in the toilet of the office bathroom. Tests showed it contained
residue of methamphetamine. On. Dec. 20, Dec. 31 and Jan. 3, the F.B.I.
said, he was seen by an unnamed witness injecting methamphetamine.
The only one who could have seen him, Mr. Roach said, was Ms. Bailey,
who later went public as the named complainant in the lawsuit to remove
him from office. Ms. Bailey, at her desk in the district attorney's
office, did not dispute it, saying, "He trusted me." She
declined to say more until the sentencing.
Mrs. Roach voiced no interest in a
reconciliation but at one point sounded wistful. "He told me,
'There are some things you don't know about me,' " she recalled.
"I wasn't patient. I should have shut up and listened."
At his parents' house, Mr. Roach stepped
outside the house for a cigarette. He had been pronounced addiction-free
at a Dallas treatment facility he was sent to after his arrest, he
said, but still needed his nicotine. Smoking is banned in prison,
he reflected bleakly. He should give it up, he said, but added that
now "is not a good time to give up anything." If he is sentenced
to prison, he said, he does not know where he will end up, but that
no place will be much good. "Prosecutors don't do well in the
pen," he said.
Experts Question Rise in Pediatric Diagnosis of Bipolar Illness
Sandra G. Boodman, Washington Post- 2/15/2005
From the time her son was born, Jennifer DeWeese said, she suspected
something was wrong. As an infant he cried inconsolably and slept
mostly in hour-long snatches. At 3, he was always irritable and had
prolonged tantrums triggered by the slightest change in his routine.
A therapist told his mother he was emotionally disturbed and suggested
she read a popular book about childhood bipolar disorder. A year later
a child psychiatrist in Virginia Beach made the diagnosis: the 4 1/2
-year-old was manic-depressive. A few months later, when his even-tempered
sister grew moody and volatile, DeWeese took her to the same psychiatrist.
They sat down with DeWeese's well-thumbed book about bipolar children
and went through its symptom checklist. Based largely on those results
and the family's history -- DeWeese said she learned during her divorce
that the children's father had been diagnosed as bipolar in high school
-- the psychiatrist told DeWeese her 5 1/2-year-old daughter was bipolar,
too. "I feel relieved to know there is something causing their
symptoms and something we can do about it," said DeWeese, 34.
She is convinced, she said, that her children's problems are inherited,
not a reaction to their father's permanent departure, a bitter divorce
marked by allegations of spousal abuse, a bankruptcy that resulted
in the loss of the family's house and car, DeWeese's frequent hospitalizations
for kidney disease and the arrival of a new stepfather.
Now 6 and 8, DeWeese's son and daughter
exemplify a trend that is roiling mental heath: the burgeoning number
of children diagnosed with bipolar illness, also known as manic depression,
which affects about 2.3 million Americans. The illness, which is usually
diagnosed in adolescence or early adulthood, is a serious and disabling
mood disorder that, if untreated, carries an elevated risk of suicide.
Sufferers typically cycle between manic highs, in which they can go
for days without sleep in the grip of grandiose delusions, and depressive
lows, marked by a preoccupation with death and feelings of worthlessness.
There is no test for bipolar illness,
which is believed to result from a poorly understood interplay between
genetics and environment. Although the disease runs in families, according
to the National Institute of Mental Health (NIMH), most children with
one bipolar parent won't develop the illness. Their risk is about
10 to 15 percent compared with 1 percent among the general population.
NIMH officials say there are no reliable statistics on the risk posed
by having two bipolar parents. Statistics documenting the increase
in pediatric bipolar diagnoses are elusive, but a dozen psychiatrists
and child psychologists in the Washington area and elsewhere interviewed
for this story say there have been sharp increases in the past decade.
Before that, the illness was rarely diagnosed before adolescence.
Although definitive answers about the
disorder in children await the results of several NIMH-funded studies
currently underway, many doctors aren't waiting. Proponents of early
intervention say that aggressive treatment can limit the damage of
untreated mental illness. As a result, some preschoolers barely out
of diapers are being treated for bipolar disorder with powerful drugs,
few of which have been tested in children.
At Dominion Hospital in Falls Church,
which houses the Washington area's largest inpatient psychiatric unit
for children, psychiatrist Gary Spivack said patients as young as
4 have been hospitalized, sometimes for a few weeks at a time. "They're
just so out of control that almost nothing else has the power to do
it," Spivack said, who adds that many were being raised in highly
dysfunctional homes.
But some experts say the surge in diagnoses
is a dangerous fad -- one critic called it "psychiatry's flavor
of the month" -- a decision too often based on skimpy evidence,
cursory evaluations and incorrect assumptions about genetic risk.
These children are troubled, critics say, but most don't meet psychiatry's
official diagnostic criteria for the lifelong psychotic disorder.
"Labeling severe tantrums in toddlers as a major mental illness
lacks . . . validity and undermines credibility in our profession,"
warns Jon McClellan, associate professor of psychiatry at the University
of Washington, in a forthcoming article in the Journal of the American
Academy of Child and Adolescent Psychiatry. "The illness has
become a cultural phenomenon, adorning the cover of Time magazine
and headlining national news broadcasts."
It has also spawned numerous Web sites
and more than a dozen books mostly aimed at parents. Two of them are
written for children, including "Matt: The Moody Hermit Crab,"
whose main character winds up in a mental hospital after he tries
to stab his family with a kitchen knife.
'Very Disturbed Children'
Joseph Biederman, a professor of psychiatry at Harvard and one
of the most forceful advocates of the aggressive treatment of preschoolers,
thinks bipolar disorder has been "severely under-diagnosed"
in children. He likens the criticism he has encountered to the outrage
that greeted Galileo's challenge to the notion that the Earth was
flat. "The diagnosis is controversial only because it has been
assumed not to exist," said Biederman, chief of pediatric psychopharmacology
at Massachusetts General Hospital.
In his view there are clear-cut symptoms
that distinguish bipolar disorder from attention-deficit hyperactivity
disorder (ADHD), with which it is often confused, or other problems.
He said studies have found that bipolar children are severely agitated
and aggressive, grandiose (they tell the teacher how to run the class
or think they have the same authority as a parent), hypersexual (one
report cites children who imitate sexy rock stars or use explicit
language) and experience very rapid mood swings, sometimes several
times an hour, during which they can become explosively angry. "These
are very disturbed children that are a nightmare to treat," said
Biederman, who estimates he has seen nearly 100 of them: 3-year-olds
so assaultive their parents feared for their safety; 5-year-olds who
downloaded pornography from the Internet; and preschoolers who literally
tore apart his office during a consultation. "These symptoms
are not subtle," he said.
Maybe not, said Washington psychiatrist
and lawyer Wayne Blackmon, but they are also suggestive of a host
of other problems: depression, anxiety, abuse, ADHD or a behavioral
problem such as conduct, explosive or oppositional defiant disorder.
"With kids, especially little kids, all disorders pretty much
look alike," added Blackmon, a former president of the Medical
Society of the District of Columbia. "Kids tend to behave by
lashing out and acting out."
Experts on both sides agree that the
1999 publication of "The Bipolar Child" had a galvanizing
effect. Supporters of early diagnosis and treatment say the book empowered
parents and informed clinicians. Critics say it is rife with pseudoscience
and exaggeration. Written by New York psychiatrist Demitri Papolos,
research director of the Juvenile Bipolar Research Foundation, and
his wife, Janice, the book has sold more than 100,000 copies and led
to the couple's appearances on "Oprah" and NPR's "Morning
Edition." It is the book DeWeese said she relied on and the one
the Virginia Beach psychiatrist used in diagnosing her children.
"This book revolutionized child
psychiatry," said Washington University in St. Louis psychiatry
professor Barbara Geller, who called it "data-free" and
"very controversial." Geller said she thinks the book had
a positive influence because parents read it "and began pouring
into child psychiatry clinics" for help. "When I give talks
now, it's a very different response than five or 10 years ago,"
said Geller, who is conducting a long-term study of bipolar children
funded by NIMH. "The reaction used to be, 'I don't really believe
it's out there.' " Now, she said, the question she hears is,
"How can I recognize it?"
The 419-page second edition is replete
with anecdotes, many of them desperate parents' postings from Web
sites. It lists famous people the authors say were bipolar, including
Abraham Lincoln, Ludwig van Beethoven and Teddy Roosevelt. And it
describes what the authors call "ultra ultra rapid cycling"
-- mood swings that occur as often as every few minutes throughout
the day, a phenomenon some child psychiatrists say they have never
observed.
Among the book's most controversial
features is its list of more than three dozen symptoms commonly seen
in bipolar children, including silliness, separation anxiety, night
terrors, carbohydrate cravings, fidgetiness, extreme bossiness, bed-wetting,
lying, social anxiety and difficulty getting up in the morning. "That
book cast such a wide net that everyone is being called bipolar,"
said Parmajt Joshi, chief of psychiatry at Children's National Medical
Center in Washington. "There are too many kids whose parents
read the book and come in and say, 'I think my kid has this,' when
they don't. "We see that a lot."
Houston child psychiatrist Laurel L.
Williams says she has "un-diagnosed" between 50 and 75 children
in the past few years who had been declared bipolar by other physicians,
mostly psychiatrists. Last April she published a study in Psychiatric
Times detailing the cases of three preschoolers whose symptoms resulted
from communication disorders, not manic depression.
Papolos said he doesn't believe his
book has contributed to misdiagnosis. "If they read our book,
I think they see a symptom picture in their children that is fairly
comprehensive," he said. Some desperate parents, who have struggled
for years with their children's problems and an acute shortage of
mental health services, say the book's descriptions resonated with
them and they found its take-charge tone reassuring. "I was relieved
because it made sense," said Elise Cohen of Rockville, a medical
librarian whose daughter was diagnosed last year at age 10. "If
we have a diagnosis there are treatments, even if it's not what you
want to hear."
Growing Acceptance of Drugs
Until recently, many doctors were reluctant to prescribe the powerful
mood-stabilizing drugs adults take for bipolar disorder to young children,
whose central nervous systems are still developing. Most of these
drugs -- which can have serious and sometimes life-threatening side
effects, including diabetes, significant weight gain, hormonal problems
that can cause infertility, and fatal blood disorders -- have not
been tested in children. Some are epilepsy drugs used to control seizures
and not approved to treat psychiatric disorders, which are widely
used anyway because some doctors think they are effective.
Resistance to using medications has
softened, experts say, for a variety of reasons: aggressive marketing
by pharmaceutical companies; the skyrocketing use of drugs in preschoolers
to treat ADHD and depression; a lessening of the stigma surrounding
bipolar disorder spurred by the accounts of celebrities such as Ted
Turner and Jane Pauley; and an insurance system that rewards brief
appointments to check mediation over time-consuming diagnostic evaluations
and behavioral therapy.
The realization that "these are
biological illnesses that require biological treatment and that you
don't have to let these kids suffer" is relatively recent, said
Martha Hellander, a lawyer and the founding executive director of
the six-year-old Child and Adolescent Bipolar Foundation (CABF), an
influential advocacy group based in Illinois. Hellander said the nonprofit
foundation, which has 25,000 members, receives funding from several
drug companies. Medications are a cornerstone of treatment, Hellander
said, even for very young children. She said the youngest patient
she's heard of is an 18-month-old girl who was diagnosed as bipolar
largely because she screamed incessantly and had a bipolar mother.
Hellander said the baby was medicated with lithium. Most children
take at least three drugs simultaneously to control their moods and
alleviate depression. Some try dozens of combinations and doses.
DeWeese said her daughter, who has
tried more than half a dozen drugs, some of which made her act like
"a raging maniac," currently takes Abilify, an antipsychotic
primarily used to treat schizophrenia in adults. Recently, DeWeese
said, the dose had to be cut after the 8-year-old started drooling
and one side of her face drooped. Hellander said parents are often
asked how they can give these drugs to their children. "We don't
have any choice," she said, comparing them to lifesaving chemotherapy.
"Most of us are grateful these medications exist. In earlier
days our children would have been institutionalized."
But Blackmon said the drugs can cause
the very symptoms they have been given to treat: hyperactivity, insomnia
and even psychosis. "There's a lot of throwing medications at
people without thinking about what the problem is," he added.
"Once somebody has a label, it is highly unlikely that label
will be questioned. And by the time a person has been on 20 different
drugs, you can no longer figure out what's wrong." Donna DeHart
Burson agrees. Her 13-year-old daughter has taken more than a dozen
drugs since her diagnosis several years ago. "If one doesn't
work, the doctors' answer is to just keep adding more and more medications"
or increasing the doses, said Burson, who lives near Winchester, Va.
Don't Blame the Parents
Many parents say that a bipolar diagnosis meant they were no longer
blamed for their children's behavior. "At first he only had meltdowns
in front of me," recalled Rebecca Goolsby of Springfield, a Navy
scientist whose son was diagnosed last year at 5. "Everyone told
me it was me, that I was just not handling him well. It was the most
horrible thing to sit there every day and have people telling you
that." "It is not a parenting issue," said Karen Leatherdale,
of New Brunswick, N.J. She said she finds it hard to ignore the stares
when her 6-year-old son, diagnosed at 3, has a meltdown in Wal-Mart.
"We can't stop this from happening. It is nothing we can control
or the child can control."
The University of Washington's McClellan
has a different view. "There are a lot of kids who have problems
regulating their behavior," he said, but he is concerned that
the singular focus on drugs may give short shrift to behavioral strategies
or personal responsibility. "There's something very seductive
about being told that your kid has a neurobiological disorder and
needs to be medicated," said McClellan, who is chairing a committee
on pediatric bipolar disorder for the American Academy of Child and
Adolescent Psychiatry. "It lets people off the hook."
McClellan, who directs a state hospital
program for children, said that proper treatment requires a careful
diagnostic evaluation. Such an evaluation can take four hours or more
and includes interviews and observations of the parents and child,
psychological testing, a physical exam, detailed family history and
information from teachers, coaches, day care staffers and others who
know the child. But psychiatrists say that insurance reimbursement
is skewed in favor of medication -- and little else. A psychiatrist
can make two or three times as much from an hour of medication checks
than from an hour of therapy.
Although it's not discussed much, misdiagnosis
can have a profound impact. One woman, who agreed to be interviewed
on the condition that her name not be published to protect her daughter's
privacy, said that when the girl was 14, she was handed a prescription
for lithium after a single visit to a psychiatrist. Four years later,
doctors discovered that her severe depression and mood swings were
the result of an undiagnosed pituitary tumor. "She's really angry
at the doctors and at me because I accepted the diagnosis too fast,"
the woman said. Her daughter, she said, "barely got through high
school" and had side effects from the lithium, which made her
hair fall out. Now 19, she said, her daughter is caught in a Catch-22:
Because the family was open about her diagnosis, she feels the need
"to tell everyone she's not bipolar. And the reaction she's encountered
is not what she thought. It's, 'Oh sure, the bipolar doesn't think
she's bipolar.' "
Report Questions Stress Disorder Efforts
Associated Press, 2/16/2005
WASHINGTON -- Congressional investigators are questioning whether
the Veterans Affairs Department can adequately help troops who may
return from Iraq and Afghanistan with post-traumatic stress disorder.
The agency said that so far it has treated 6,400 veterans of the Afghanistan
and Iraq wars for the disorder and that overall, its health care system
has provided such services for 244,000 veterans.
But the Government Accountability Office,
in a report Wednesday, said it is not clear whether the VA can meet
the demands for treatment from veterans of those two recent wars.
Agency data for the 2004 budget year show that fewer than half of
those using VA health care are screened for the disorder, according
to the investigative arm of Congress. If veterans returning from combat
do not have access to these services, ``many mental health experts
believe that the chance may be missed ... to lessen the severity of
symptoms and improve the overall quality of life'' for those with
the disorder, the report said.
The VA contended the report did not
accurately describe the type of services for post-traumatic stress
disorder that the agency has provided over the past 20 years or its
ability to provide such services in the future. ``We take exception
to this report,'' said Dr. Jonathan Perlin, VA's acting undersecretary
for health. The report says the VA is a ``world leader in PTSD treatment,''
Perlin noted. The report was requested by Illinois Rep. Lane Evans,
the House Veterans Committee's ranking Democrat.
Some experts estimate about 15 percent
of military personnel serving in Iraq and Afghanistan could develop
the mental health condition. Symptoms include intense anxiety, insomnia
and difficulty coping with work, family and social relationships.
If the disorder is not treated, it can lead to substance abuse, severe
depression and suicide.
Investigators said the VA's has partially
put in place 14 of the two dozen recommendations from an advisory
committee that Congress created; the VA says it has completed seven.
The delay ``raises questions about VA's capacity to identify and treat
veterans returning from military combat who may be at risk'' for developing
the disorder, and maintaining treatment for veterans already receiving
help, according to the report.
On the Net: Government Accountability
Office: http://www.gao.gov
Defrocked Priest's Accuser Hailed As Hero
Joanna Weiss, Boston Globe-2/16/2005
CAMBRIDGE -- Defrocked priest Paul R. Shanley was sentenced to 12
to 15 years in prison yesterday before a roomful of alleged clergy
sexual abuse victims, who declared the conclusion to his criminal
trial a step toward collective justice. When Shanley, a central figure
in the Catholic Archdiocese of Boston's clergy sexual abuse scandal,
was led away in leg shackles and handcuffs, a brief burst of applause
was heard in the Middlesex Superior courtroom. Shanley's accuser,
a 27-year-old firefighter, was greeted with hugs, handshakes, and
gratitude. The victim is a hero, said Arthur Austin, 56, who says
he was raped by Shanley as a young man. ''What it came down to at
last" was the man ''taking on the dragon of Paul Shanley's 40-year
reign of terror," Austin said. ''So just by default, he was doing
it for the rest of us."
The courtroom was fuller than it was
during Shanley's two-week trial, largely with alleged victims like
Austin, who could not press charges because of the statute of limitations.
The sentencing was the final chapter in a trial fraught with symbolism
and high expectations: a means of catharsis for Shanley's alleged
victims, a witch hunt to his supporters.
In a statement read by prosecutor Lynn
Rooney, the victim pleaded with the judge for a hefty sentence and
suggested that he was asking on behalf of many others. ''That pervert
has victimized many, many people," the victim wrote. ''Don't
deny them their justice, too." For Shanley, the man had a pointed
wish: ''I want him to die in prison. Whether it's of natural causes
or otherwise. However he dies, I hope it's slow and painful!"
The man's wife and father also spoke,
accusing Shanley of destroying his victim's faith. The accuser's wife,
23, said her husband refuses to step inside a church for a wedding,
funeral, or christening. She called Shanley ''a coward who hid behind
God." ''No matter how many private pleas you make to God for
forgiveness, he will see through you," she said. ''You are sick
to your core."
Shanley, 74, a former ''street priest"
known for his ministry to troubled youth, was convicted last week
of two counts of child rape and two counts of indecent assault and
battery against a child. The charges stemmed from the early 1980s,
when he was a parish priest at St. Jean's Church in Newton, where
his victim was a Sunday school student. Prosecutors had asked for
a sentence of life in prison.
Shanley's defense lawyer, Frank Mondano,
said yesterday that a fair trial was impossible because of the sexual
abuse scandal. Mondano sought a lesser sentence in a county house
of correction, arguing that Shanley had health problems, no criminal
record, and no likelihood of being a security risk. ''This man's life
stands for the prospect of service to others," Mondano told Superior
Court Judge Stephen Neel, and some in the courtroom snorted. Mondano
said he will appeal both the sentence and the conviction.
Neel sentenced Shanley to two concurrent
12-to-15-year sentences, followed by 10 years of probation, and no
contact with children under age 16. He said Shanley will not be eligible
for parole until he is in his 80s. In determining a sentence, Neel
said, he considered 18 letters from Shanley supporters, who praised
the former priest for his work helping the homeless and addicted,
the medical care he brought to young people on the street, and his
support of gays and lesbians struggling with their identity. But he
also contended that Shanley's victim was young and vulnerable and
that Shanley had abused his position as a priest. ''It is difficult
to imagine a more egregious misuse of trust and authority than that
which occurred in this case," Neel said.
Middlesex District Attorney Martha
Coakley told reporters yesterday that the victim, who declined to
talk to the media, was disappointed that Shanley did not receive a
life sentence. But other alleged victims said yesterday that the verdict
itself gave them a sense of deep relief. Greg Ford, one of four original
Shanley accusers in the criminal case, faced Shanley for the first
time yesterday since the trial began. Prosecutors ultimately dropped
Ford and two other victims from the case, hinging it instead on the
testimony of a single man. Yesterday, Ford thanked the victim ''for
the courage he showed to do it by himself."
Because Shanley committed the crimes
before state sentencing laws changed in 1993, Neel was required to
punish him under the prior rules, legal specialists said yesterday.
Under those rules, Shanley would be eligible for parole in early 2013,
after serving eight years. Even if he is not paroled, Shanley could
still be released for good behavior, without the conditions of parole,
in early 2014 after serving just under nine years, legal specialists
said. If he is released early, Coakley said, prosecutors would probably
seek to have him committed as a ''sexually dangerous person,"
a right they now have under state law. ''In a practical matter,"
she said, ''the sentence imposed today will be life."
Throughout the trial and sentencing,
Shanley, a slender, balding man who wore loose-fitting suits and a
hearing aid, never spoke on his own behalf. He was stone-faced yesterday
as court officers closed handcuffs around his wrists. Paul Shannon,
a friend of Shanley's, questioned whether the victim's allegations
were true and likened the case to the Salem witch trials. ''Everyone
just gets caught up in a certain belief system," Shannon said,
arguing that the jury was swayed more by emotion than the facts of
the case.
A group of state lawmakers and advocates
for abuse victims said they would use Shanley's sentencing to make
a renewed push today for legislation abolishing the 15-year statute
of limitations for the most serious sex crimes, including rape of
a child. Representative Ronald Mariano, a sponsor of the legislation,
said that because it can take decades for victims of child sexual
abuse to work up the courage to come forward, the majority of abusive
priests will never face justice in a criminal court. ''Most of the
victims who were abused were abused by people in positions of authority,"
said Mariano, a Quincy Democrat. ''They need time."
For the Autistic Child, Time Matters
Shari Roan, Los Angeles Times- 2/16/2005
Dr. Pauline Filipek sizes up her tiny patient in her toy-strewn clinic in Orange. As the 22-month-old boy enters the room, he doesn't look at Filipek or anyone else. He plows into a pile of toys on the floor, sometimes walking or crawling over them, but doesn't speak. He could easily pass as a good-natured child who needs little attention. But Filipek, a neurologist, sees something else, behaviors "that make the hair on the back of my neck stand up." Most toddlers will carry a toy in only one hand — this child clutched a toy in each fist when entering the room. And children this age typically will scope out a room full of strangers warily, sticking close to Mom or Dad for reassurance.
The scene is familiar to Filipek. At the end of a 90-minute exam she tells the child's parents that their son has autism. Filipek pulls her chair close to the couple, first-time parents in their 30s, and leans toward them before she continues. "The fact that you're here with him, this young, is wonderful." It is balm intended to soothe the harsh news. And Filipek's encouragement is sincere. She is among a growing number of child development experts who say that autism often can be identified much younger than is typically done today, and that early treatment can alter, sometimes dramatically, the course of the brain disease that affects about one in 500 U.S. children.
Geraldine Dawson, director of the Autism Center at the University of Washington's Center on Human Development and Disability, says doctors now can reliably diagnose autism by age 2 and researchers are developing screening tools to identify kids as young as 18 months. "The long-range goal," she says, "is to be able to detect autism at birth or in very early infancy."
Cases on the rise
Early recognition is one of the most hopeful developments in the sobering world of autism, a neurological disorder in which people have difficulty communicating and interacting socially with others. Autistic children often speak little, ignore others and display repetitive behavior, such as spinning in circles or focusing on one object for hours. They may excel at something in detail, such as spelling or playing a musical instrument, but become overwhelmed when trying to navigate the world at large. The disorder is also known as "autism spectrum disorder," reflecting the wide range in severity of cases and the various subtypes of autism, such as Asperger's disorder and pervasive developmental disorder.
In California, an estimated one in 322 children has been diagnosed with autism, according to the state Department of Development Services. According to its 2002 report, autism cases increased 273% from 1987 to 1998. Between 600 and 800 children with autism are added to the DDS's service rolls every three months. No one knows what causes autism or why more children are developing it.
Many doctors see the effort to diagnose autism earlier as a significant development that could yield clues to what causes autism and how best to treat it. But the trend in early diagnosis has also created a backlog of parents who are demanding diagnostic evaluations earlier — often for babies. Doctors and insurers frequently deny these services for several reasons: Evaluations are costly, there is a lack of trained therapists and some healthcare providers say that autism can't reliably be identified before age 3 or 4. "It's like there are two camps. You have some doctors — the few — who are comfortable diagnosing children at the age of 1," says Rebecca Landa, director of the Center for Autism and Related Disorders at the Kennedy Krieger Institute in Baltimore. "And you have others who feel strongly that you can't diagnose before age 3. They won't even talk about it. Research on early diagnosis is coming off the press as we speak; it's that recent. People are just starting to list what the red flags are in infants and toddlers." Those lists are beginning to make their way into the hands of parents and pediatricians. Later this month, the national Centers for Disease Control and Prevention will launch a campaign to promote earlier diagnosis of autism. A lack of nonverbal communication could be one of the first signs that a child isn't developing normally, experts say.
At about 8 months, Dawson says, babies should babble and pay attention when their names are called. By 12 to 14 months, they should point, wave, gesture, imitate others and play peekaboo. "This is the age when the child points at something and looks at the mother to see if she sees it," she says. "They show things to their parents. Even before kids are using formal words, they are using their bodies for pointing and showing. This is important because with a child with autism both the verbal and nonverbal systems are affected."
Although these behaviors are subtle, they are proving to be fairly reliable diagnostic tools. In a 1994 study, Dawson and colleagues examined videotapes of the birthday parties of year-old children later diagnosed as autistic and compared them with videos of normal children. Researchers watched for four behaviors: looking at others, gesturing and pointing, showing things, and responding when their names were called. They weren't told which children were later diagnosed as autistic. Nevertheless, they were able to correctly identify 10 out of 11 normal children and 10 out of 11 autistic children.
Other potential signs of the disorder can emerge between the first and second birthdays, experts say. While most toddlers will be speaking at least a few words by 14 to 18 months, autistic children often do not. Delayed language development may not by itself indicate that a child is autistic, but a delay combined with other autism symptoms is reason for concern, doctors say. Also, an estimated 20% of children with autism appear to develop normal speech, but then begin to regress, no longer speaking words they once spoke, growing silent, shunning others, becoming isolated.
Doctors can only identify symptoms that may indicate autism in very young children, says Filipek, noting that the earlier the diagnosis is made, the greater the chance of misdiagnosing a child. Still many experts say they feel it's better to recognize any developmental delay and address it as early as possible, no matter what the disability is labeled.
Acting on instinct
While doctors look for specific developmental signposts, many parents are relying on their own awareness of rising autism rates and a "gut feeling" to bring their children in for evaluations at younger ages than ever before. Cindy Bluth had read about autism in women's magazines and knew enough about the disorder to begin worrying when her daughter, Juliette, was 7 months old. Cindy had three older children when she married her husband, Jon, in 2000. "I know a little bit about babies," says Bluth, picking up scattered toys in the family room of her San Clemente home one recent morning. "I realized that Juliette never really looked at Jon and that my face should be her favorite 'toy,' but she did not want to look at me." Juliette was also not babbling.
When her daughter was 10 months old, Bluth called the pediatrician — telling herself she was being silly. "You don't want to be this parent who thinks everything is wrong all the time." But the pediatrician agreed that Juliette's silence and avoidance of eye contact was unusual and said he wanted to see the baby again in two months. By then, Juliette was walking on her toes (a characteristic of autism) and spent hours engrossed in the same Disney videotape. For Bluth, the clincher came one day when she sat in the park and watched as Juliette sifted through gravel for 40 minutes, engrossed. "I decided then I wasn't going to sleep another night without finding out what was wrong," she says. Juliette was diagnosed with autism at UC San Diego shortly after her first birthday.
In her clinic near UC Irvine Medical Center, Filipek says most early diagnoses result from parents' concerns, not pediatricians' referrals. In one 1997 study of 1,300 families, children were diagnosed with autism, on average, at age 6. However, many of the parents had sensed something was wrong when their children were about 18 months old, and they had sought medical assistance, on average, by age 2. "Parents say, 'I have known something is wrong since they were 12 months old, and I've been from physician to physician to physician and they always say not to worry,' " Filipek says. "If you think something isn't right, 85% of the time you are on the money as a parent."
The CDC's new campaign aims to educate pediatricians about symptoms while urging parents to reject "wait and see" advice from a doctor. "I think doctors are afraid of misdiagnosing this," says Bluth, who credits her pediatrician for listening to her early concerns. "The benefits of starting therapy early are so great. How is it going to hurt them to be evaluated? A misdiagnosis wouldn't be the end of the world."
An intervention backlog
The controversy over early diagnosis can create obstacles after a child has been identified as autistic. Brodie and Karen Sadahiro's daughter, Grace, 3, was diagnosed with autism by UCLA physicians at 26 months. Despite a 14-page diagnostic report from UCLA, doctors at a local treatment clinic — which contracts with the state to provide free or low-cost services — rejected the family's request for therapy, saying autism cannot be diagnosed before age 3.
After filing two lawsuits and threatening a third, the Sadahiros obtained an autism diagnosis and services for Grace late last year. "Most of us do not have enough money to fund our own therapy," Karen Sadahiro says. "So we have to wait until after age 3. What is the point of early diagnosis if you can't get early intervention?" Many autism treatment centers are set up to deliver therapy to preschool and older kids only, Landa says. While more doctors are making early diagnoses, she says, "the centers aren't prepared for it. The money isn't there."
Although there is little research to support its usefulness, most autism experts say that intensive therapy — which usually includes 20 or more hours a week of behavioral, speech, physical and occupational therapies — can improve a child's functioning. The earlier such therapy begins, the better, they say. Kids with autism must be taught what comes naturally to other children. "We don't know yet whether early intervention will give us more of an advantage," says Filipek. "But autism is like a deprivation experience. We feel that if we can stimulate, very early in life, those areas of the brain that are emerging and developing, we can change the course of development."
Early, aggressive interventions have already disproved some notions about the disorder, says Catherine Lord, director of the University of Michigan Autism & Communication Disorders Center.
For example, doctors used to believe that about half of all autistic people couldn't talk. But in Lord's sample of children diagnosed at age 2 and undergoing therapy, only 14% were still nonverbal by age 9 and about 35% to 45% could speak fluently. Lord contends that many children who are diagnosed young and receive three to four years of intensive therapy can enter regular elementary schools and function independently. Her long-term study following children diagnosed at 2 found that about 5% no longer have autistic symptoms at age 9, while an additional 20% have some symptoms but can attend regular schools. The remainder improve but continue to have difficulties. Children who undergo intensive therapy can sometimes progress so well that they appear normal by preschool age and are denied further services. The responsibility for providing therapy to developmentally delayed children typically switches from regional centers to public school districts at age 3.
Diagnosed as autistic shortly after his first birthday, Kai Viruleg underwent extensive therapy and was able to converse, look at strangers and enter preschool by his third birthday last September. But because he no longer exhibited autistic behaviors, the school district denied Kai access to several of his previous therapies. His mother, Jennifer Damian, had to fight to restore his services, hiring a lawyer at one point. Meanwhile, some of Kai's autistic behavior reemerged. "It has taken me about three months to line up new services, and he has lost a lot of ground," says Damian, of Northridge. "Regression comes very quickly. It only takes a week of missed therapies."
Damian's determination — she quit her job to become his full-time advocate — has given Kai a chance he may not have had. Most days, Damian shuttles her son to therapy appointments, doctors' visits and school from 8 a.m. to 8 p.m. After almost two years of intense intervention he is on track to enter a normal elementary school. "I remember the day he was diagnosed, after I finished bawling I said, 'I'm going to cure him of his autism,' " Damian recalls. "Well, autism is not a curable disorder. But he would have been severely autistic at this point if we had done nothing."
Behaviors to watch
The criteria used to diagnose autism are designed for 3-year-olds. Recent research shows certain behaviors in younger children may indicate a higher risk for developing the disorder. No single factor indicates a child may have autism; the presence of several symptoms could be cause for concern.
Possible symptoms at 6 months:
• Not making eye contact with parents during interaction
• Not cooing or babbling
• Not smiling when parents smile
• Not participating in vocal turn-taking (baby makes a sound, adult makes a sound, and so forth)
• Not responding to peekaboo game
At 14 months:
• No attempts to speak
• Not pointing, waving or grasping
• No response when name is called
• Indifferent to others
• Repetitive body motions such as rocking or hand flapping
• Fixation on a single object
• Oversensitivity to textures, smells, sounds
• Strong resistance to change in routine
• Any loss of language
At 24 months:
• Does not initiate two-word phrases (that is, doesn't just echo words)
• Any loss of words or developmental skill
|